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@summer33

Thought I should let you know how my Doctor visit went. I saw my pulmonary Doctor, not the infectious disease doctor. I told him how I was concerned about the Arikayce side effects. He has been treated with the injections for tuberculosis years age. So that told me he knew how this medication made you feel. He agreed with me about my concerns. He called my Infectious d. Doctor to see what his diagnosis was for me. He said he was waiting to see if the sputum shows up anything, which it has not so far. It has two more weeks to show the results. So, as of now I am off every medication for two weeks, maybe more depending on how I do as well as the sputum test. I ask how I would be if I decided not to take future treatment. He said I may cough a lot if MAC. decides to get worse. I will know more once the test come back. Hope you are feeling better.

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Replies to "Thought I should let you know how my Doctor visit went. I saw my pulmonary Doctor,..."

@summer33 You could also your dr about using light antibiotics as a prophylaxis ( infection preventative) that is what my Mayo doc did for me. So far, test neg for mac since 2014.

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