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toomanyoars (@toomanyoars)

Overwhelmed while searching for second diagnosis

Autoimmune Diseases | Last Active: Dec 20, 2018 | Replies (20)

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@toomanyoars

Update: Today was the rheumatologist appointment I have been waiting for. He tested for Lyme and doubled my sleep meds. I was literally burning with sweat running down my back and face and my BP was 136/114. Random spikes in BP …not abnormal for me. My temp was up two degrees like it does when I burn. My FSH shows menopause now but that doesn't explain the fever or BP. He did my physical exam and said I had "Fibro from hell", but that he didn't think approaching this as an Autoimmune was a good idea because he thought the risk outweighed the benefits of suppressing my immune system even though there are things that look like autoimmune symptoms. I haven't been able to get an ACTH test but I am working on it. Thanks everyone for for your repliea and suggestions. They have really helped.

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