Hello @lendries and welcome to Mayo Connect.

I appreciate your concern for your son. Neuroendocrine tumors are rare. It is good that you are looking for help and guidance. I would first of all encourage you to seek a consultation with a NET specialist. Here is a list of doctors throughout the country who specialize in this rare type of cancer: https://www.carcinoid.org/for-patients/treatment/find-a-doctor/. Even if you only visit for one consultation, the NET specialist can then follow up with your local oncologist. We have had a few parents who have discussed NETs diagnosis and their children. I would like to invite, @debf, to this conversation as she has also has a teenage son with NETs.

In addition, to seeking a consultation with a NETs specialist, I would also encourage you to learn as much as you can about this rare disorder. Here is some information from Mayo's website, https://www.mayoclinic.org/diseases-conditions/carcinoid-tumors/symptoms-causes/syc-20351039.

How is your son feeling now? How long ago was his surgery? Does he have any symptoms of carcinoid syndrome (flushing, diarrhea, etc.)?

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