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Pauletta (@rachelp)

PMR or Steroid Myopathy

Polymyalgia Rheumatica (PMR) | Last Active: Apr 22, 2019 | Replies (25)

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@johnbishop

Hi Pauletta @rachelp, there is quite a bit of information available on Tocilizumab used for PMR and it does seem to have good reports. Here are a few I found.

Tocilizumab is effective against polymyalgia rheumatica: experience in 13 intractable cases
https://rmdopen.bmj.com/content/1/1/e000162

Tocilizumab shows promise as a new treatment for GCA, PMR
https://www.acrdailynewslive.org/tocilizumab-shows-promise-as-a-new-treatment-for-gca-pmr/

John

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Replies to "Hi Pauletta @rachelp, there is quite a bit of information available on Tocilizumab used for PMR..."

I am new to this sight. How do I start a new thread. Maybe I just did. I began with symptoms 5 weeks ago. I am currently trying to get a diagnosis. Elevated sed rates and c reactive proteins; pain and stiffness in am lasting 2 to 3 hours; pain at night just trying to move in bed; pain is bilateral shoulders, hip, and buttock areas; limited shoulder ROM; mid morning pain decreases and ROM improves. I was given prednisone initially for one week. Symptoms improved, then came back. Another 20 days of prednisone initially 40mg for 5 days, then tapering down every 5 days. I did get relief initially then pain returned. Now on second round of prednisone awaiting more test results.