Hello @lvolz, Welcome to Connect. I am sorry your son is having to deal with so many health problems and not being able to get any diagnosis as to what is going on with his health. I'm hoping others with similar stories can share some suggestions for you. There is a really good discussion on hives that I would recommend reading through and making connections with other members posting about hives and causes.

Groups > Skin Health > Horrible Hives
-- https://connect.mayoclinic.org/discussion/horrible-hives/

Also, I would like to invite other Connect members who have posted about undiagnosed autoimmune diseases to see if they have any suggestions. @lisabeans, @cmtg, @pinkmk, @aman_23_23, @mommaj, @tljam, @whitechinacat, @palscoreen, @terryblink, @pinkstar, @rebo, @v1crew, @jewel8888, @tbeckys, @WendyAnne, @559purplepatty, @atorset, @beff2468, @taterjoy do you have any suggestions you can offer @lvolz

I’m not sure if it is an option for you but if it is, the Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: http://mayocl.in/1mtmR63.

I thought this video maybe helpful to let you know you are not alone

What happens when you have a disease doctors can’t diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.
— https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose

@lvolz are you able to give us an update when your son meets with the gastrointestinal doctor?

Hope you find some answers soon.

John

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