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Doctors who need help or maybe patients

Autoimmune Diseases | Last Active: Sep 8, 2018 | Replies (11)

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@oregongirl

Maybe you already said, but what state are you in? Its sounds like you are in Texas. I go to the University. My RA doctor is SO UNSURE of what is wrong and how to treat me. She sent me over to the hospital for two infusions and I FELT SO MUCH BETTER. I told her this and could she schedule me again when it is appropriate? She didn't . She had sent me to an Oncologist also. I went for two times and finally asked...WHY are you doing the tests on me? Well, you have about 1% positive for Multiple Myloma. WOW! He said, I will check again in 1 Yr. I am 76 and I may not be here in one year. Further, my record already says, I will not do any Chemo or Radiation. So he probably figured, there was no money to spend on me. I have Excellent Insurance. The only doctor who has actually treated me well is my Spine Doctor. BUT, unless they tell you, you will not know the NEW LAW on this. THREE times in my back and three times in m neck. All different drugs. Then they determine which drug proved to do the best. I said, well none did not what. He said, I don't know. Maybe it is because I am at the University. I know they treat Charity cases. But, I am not one. OMG. 1 1/2 yrs there and no diagnosis. My pain is severe. The only drug the University approves for pain in Tramadol. I think it is time to move on to real doctors. What can I say. I have terrible pain. Thank God for the Hemp

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Replies to "Maybe you already said, but what state are you in? Its sounds like you are in..."

@lioness l live in Oklahoma and l have good insurance that's why they take advantage and run all these test. I have had all surgery, shoulder, back, foot, and then my liver procedure. Then l fractured my ankle again and the doctor said the way you fracture your ankle that not common so l might have to do surgery but l will put you in a cast and see what happens. I told him no your not doing surgery. I can only say thank you Jesus l didn't have to have surgery. And to keep falling and no answers is unreal to me. When l lived in NY l was told l had shingles in 1978 and here they just started talking about it in 2010. When l had encephalitis in 1997 then didnt start talking about until 2010 and my professor sister had it and they kept saying at 65yrs and older this can happen to you l was 39. I asked my professor how old her sister was when she had hers she said 42. So that was definitely before 65. Then l was in 2 mental hospitals because it was encephalitis but now they say its autoimmune encephalitis and you can have mental tendencies but it's not. And l really wouldn't have found anything about it until they had a documentary of a women who had it and she wrote a book. So l keep telling the doctors here but they don't care. And l am the point l don't want to go to er because always they have a psychiatrist right near them. And when there nothing they can say they have to put something down because the psychiatrist came to see you. My husband was telling me about a doctor in Texas buy she wants you to pay first and you file with your insurance because she knows the insurance is not going to give her all she wants to charge. And l don't know if you know about OU hospital but if you talked to people out here they will say that's the worst hospital. Then on my records the doctors say l have been to so many doctors and hospitals and the diagnosis is the same and that's because your records follow you and the doctors never say another doctor is wrong but when l went to the mayo clinic they did say what wasn't diagnosed correctly. And l was given 2 meds that were recalled and meds by doctors and the pharmacy l am allergic too. Our medical teams has really changed it's a business not medicine.