@liyana You are looking at a condition that will probably last through your lifetime. This is not to say that it should destroy your life. First there is a lot of confusion about exactly what MCTD is, and I know only enough about that to stay away. But I should note that almost every autoimmune disease gets confused with it. So keep making your notes in your book. I am including with this note my own set of notes, including my medical timeline. You can do the same thing. I don't really care if you cry or not, that is your choice. But do not let it define you or control you, or destroy you. And keep in touch. We all think we can define what you have, but because there are thousands of variations on both yours and ours (Mine is AL-Gelsolin, We are pretty sure) we can finally only do some educated guesswork. And good to meet you. Stop by some day! Old Karl

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