← Return to Adenoid cystic carcinoma (ACC) of vulva: Anyone else?
DiscussionAdenoid cystic carcinoma (ACC) of vulva: Anyone else?
Gynecologic Cancers | Last Active: Sep 2, 2018 | Replies (4)Comment receiving replies
Replies to "@stoligirl Welcome to Mayo Connect and thank you for posting about this rare type of cancer...."
Hi Teresa! Thank you for responding. I am in Colorado. I was diagnosed 9/1/2017. 1 year ago today. So far, I have had 3 partial rad vulvectomy's and a colostomy placed. 2 recurrences in a year. Radiation was briefly mentioned, and may still be on the table. But the Dr previously nixed it as he feels that radiation and/or chemo would not be beneficial for this particular type, and I'm not keen on yet another surgery at this time. It has become very frustrating reaching out to different treatment centers to find experience with this.