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nicoleny (@nicoleny)

Undiagnosed for 3 years

Digestive Health | Last Active: Sep 4, 2018 | Replies (22)

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@sita

I have the same pain. Additionally I have had fatigue, nausea and gagging, weakness in arms and legs, visual blurring, and brain fog. I also have neuropathic pain and lack of sensation for bowel and bladder functions. Do you have other symptoms besides the pain in your side?
Hope you get a diagnosis soon!

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Replies to "I have the same pain. Additionally I have had fatigue, nausea and gagging, weakness in arms..."

I will write more later today or tomorrow. I have these symptoms and a few more to go with. I will share what I have learned and find out what you know about why you have these symptoms.

@sita My main symptom is pain that feels like I am being stabbed from the inside out. It's in my upper left abdomen mostly but times it does radiate to the right and to my back. I also frequently have diarrhea, almost all the time. Have the doctors suggested what they think it might be for you?

My problem comes and goes…I can go months with no problem then the symptoms will start. The Docs at Mayo Clinic call these episodes “spells”. When I have one of these "spells" I have nausea, discomfort on ride side under rib cage (not pain, just discomfort), weakness all over – especially in my legs – they feel rubbery/weak, I feel light headed/dizzy, and sometimes I have acid reflux and bloating. When these symptoms first started in 2013, my BP/Pulse rate would be very high during the episode. Even now when I’m having a spell my BP can be elevated, but I have medication now and have been told how to increase the BP medication if this happens. These spells have lasted for a few days – 4 months.

I had gall bladder surgery, and they checked my liver and pancreas – said everything looked good. I have had every test imaginable trying to determine what causes these episodes, and they can’t find a cause for my problem.

For me, it seems if I maintain a healthy weight, eat real food…stay away from processed food, minimize the sugar, gluten and dairy I can prevent the “spells”. When I first started having the problem I would reduce my food intake due to the nausea. Because I was eating less, and eating healthy I would lose weight and gradually the symptoms would go away. Throughout the last 5 ½ years I have noticed that if I start eating the wrong things and gain weight, I can have an episode.

About a week and half ago I started having the symptoms, but I “fell of the wagon” a while ago and was eating things I knew I shouldn’t, and gained weight. It had been over a year since I’d had a problem. I don’t know why I do this…after 5 ½ years of analyzing my situation I know better.

There is something called “Non-Alcoholic Fatty Liver”. My symptoms are comparable to what I have read on this condition, but there is no test I’ve had that shows I have this. According to what I have read, healthy weight and eating is the answer to controlling this condition. I look forward to hearing from others who have experienced similar health issues.

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