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jen12 (@jen12)

Desperately Trying to Get Diagnosed

Autoimmune Diseases | Last Active: Dec 1, 2020 | Replies (75)

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@johnbishop

Hello @cdent411, Welcome to Connect. I'm sorry you are feeling unwanted by Mayo Rochester. I've always had an excellent experience with them for several different health conditions. Did they review your medical records when you tried to setup an appointment? I think if they review what other doctors have said and are unable to provide anything more to help you. I encourage you to call the Office of Patient Experience at Mayo Clinic.
Office of Patient Experience
8 a.m. to 5 p.m., Monday–Friday
507-284-4988

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Replies to "Hello @cdent411, Welcome to Connect. I'm sorry you are feeling unwanted by Mayo Rochester. I've always..."

Thanks for your reply, it is really appreciated. It's really disheartening, I see stories all over about people with debilitating conditions coming to Mayo and finding a solution. I've been suffering for 18 years. I've been to a couple of specialists at Mayo Clinic Jacksonville but they are just like going to any regular specialist; only looking at one aspect of a multi-system problem, not the big picture, so the whole problem is never addressed and I'm still sick. For example I saw their GI and he had a few suggestions to alleviate the GI symptoms, but didn't have a clue about the auto-immune or urological symptoms, so there was no way he could treat the whole disease. Just the GI symptoms. My PC doctor told me to go to Mayo in Rochester to have a team look at the big picture and finally get this figured out, and then they reject me. Beyond depressing. I've put in a similar request to the Cleveland Clinic but if I don't have any luck with them I will call the office of patient experience as you suggest. Thanks again.

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