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jstow07 (@jstow07)

Share Your Brain Tumor type & Years since Diagnosis

Brain Tumor | Last Active: Sep 26, 2018 | Replies (16)

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@barbaraak

I was diagnosed with GBM in April 2017 and given a 2 year life expectancy. I had a crainiotomy and the standard of care – radiation and temodar and now on the maintenance temodar of 5 days every 28 days. I have just completed month 15 of that plan. I will be on it for 2 years. My main complaint is the headaches. I have them 24/7 with some days being more severe than others. MRI every 3 months with no sign of reoccurence.

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Replies to "I was diagnosed with GBM in April 2017 and given a 2 year life expectancy. I..."

That is the same plan as my husband is on currently and he was diagnosed April 2018. John does not have headaches though. What milligrams are you taking for the week, daily dose?