Connect
← Return to Neuropathy or neurotoxicity symptoms
Discussion
Neuropathy or neurotoxicity symptoms
Neuropathy | Last Active: Dec 16, 2023 | Replies (18)Comment receiving replies
Hello @burt, welcome to Connect. Thank you for sharing your symptoms. I have small fiber peripheral neuropathy in my feet but my only symptoms have been numbness. I have no medical background or training and can only share my personal experiences. It sounds like you suspect neurotoxicity may be causing your symptoms of neuropathy.
Have you been diagnosed with neuropathy?
John
Replies to "Hello @burt, welcome to Connect. Thank you for sharing your symptoms. I have small fiber peripheral..."
Connect
No I haven't and prior to this I was in good health and active.
I have had a lot of things ruled out. I have had numerous blood/urine tests for the following:
Inflammation - neg.
Liver & kidney - normal
Heavy metals - neg.
Myasthenia Gravis - neg.
Lyme - neg.
Wes Nile - neg.
Various Parasites - neg.
Thyroid function - normal
Lupus - neg.
Thiamine B1 - normal
B6 - normal
B12 - normal
Folate - normal
Vitamin D - normal
Vitamin E - normal
Magnesium - normal
Glucose non fasting - normal
Other Tests:
Brain & spine MRI - normal
EEG - normal brain waves no seizure activity
EMG & NCV arm & leg - normal
ECG - normal heart structure function
Reflexes - all normal or slightly over active.
Cardiologist says my autonomous nervous system is not correctly regulating my heart rate or blood pressure. When I stand my heart rate increases 20-40 beats per min before settling in to a mild tachycardia of 104 - 120 bpm while standing.
My neurologist has referred me to another team.
The physicians & neurologosts have been thorough but have not found causation.
The condition seems to have settled into the following symptoms:
Numb hands and feet.
It is like wearing thin gloves & socks. I can still feel texture with my fingers just less perception of it. Sometimes during more strenuous activity my forearms and legs to feel like they are full of lead.
Balance is slightly off I have a little trouble walking on uneven ground. My gait feels impacted but I don't overtly display any ataxia and can walk tandem fine.
I get fatiqued easily and my heart rate increases moderately 140- 150 bpm with mildly strenuous activity like weed eating around the yard.
At night the bottoms of my forearms, triceps, and calves get sore. I have muscle spasms and twitches. Particularly when I am about to doze off some muscle will spasm and wake me back up.
I have insomnia unless I take medication which I never had to before this started. With the meds I sleep for 4 hours wake then sleep for 3 more hours.
The worst symptom is a constant brain fog that seems to impact my cognition and feeling of being totally present in most situations. This symptom started about a week after the peripheral symptoms.
This symptom was present before I started taking the sleeping meds as the lack of sleep was making the symptoms worse.
I guess the next step is skin biopsies to check for small fiber neuropathy.