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Concern over Gadiolinum dye in MRIs

Breast Cancer | Last Active: Dec 26, 2019 | Replies (27)

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@colleenyoung

Hi @alaskan
I'm tagging a few other Connect members, @cindylb @kruzin @gramamom @leannz, who have had lobular carcinoma to invite them into this discussion about concerns with MRI contrast dye. @floridaellie @lauries and @darlia have also discussed this issue in other discussion threads on Connect.

Here is a statement from the FDA posted May 22, 2017
– FDA Drug Safety Communication: FDA evaluating the risk of brain deposits with repeated use of gadolinium-based contrast agents for magnetic resonance imaging (MRI) https://www.fda.gov/Drugs/DrugSafety/ucm455386.htm

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Replies to "Hi @alaskan I'm tagging a few other Connect members, @cindylb @kruzin @gramamom @leannz, who have had..."

Colleen, Thank you so much for this link to the FDA sight. I was unaware of the contrast dye issue but I had an odd reaction to it when I had my MRI's.....but then, I have so many allergies and reactions to so many chemicals, I'm afraid of everything at this point. For
Alaskan and Virginia Senior - I have working on 3 years post mastectomy for lobular and I'm about due for an MRI but in the meantime my doctors have been doing full chest and axillary ultrasounds, blood tumor marker tests, physical exams. However, I will be doing an MRI soon because the lobular just doesn't show up well with anything else. I have copied the FDA information from Colleen and will be taking it to my next 6 month checkup and see what I learn. I would love to see if an MRI without contrast might be an option.

I was reading with interest about the MRI's and I don't think I had any issues with the contrast dye. My cancer was 2 years ago and I had another biopsy a month ago but it was clear, so that was good news. I've always had a lot of allergies but I don't think there was any reaction from the MRI.

Congratulations with being clear. Keep up the good work and just keep an eye out for how you react to the dye. From what I've read most people are fine with it.

Good luck.

I’m not sure how to post my questions, but would like to hear from others that are taking Ibrance. I finished my first round and blood work showed low white cells. My doctor told me to stop Ibrance for a week. Has this happened to anyone else?

@nancy2952 I see you posted your questions about Ibrance and treatment, and connected with other members in the Metastatic Breast Cancer discussion here: https://connect.mayoclinic.org/discussion/metastatic-breast-cancer-to-the-bone/?pg=5#comment-111236
That is the perfect place to have connected with others.