After a truly dreadful night of seizures, a ray of hope came by way of a phone call from David's hospital (The Epilepsy Society, UK) with a date to admit him for 2 -3 weeks to review his meds, under the watchful eye of his overall consultant; a man we trust. David will be admitted on the 5th August. For the first time in far too long, I feel as if I could actually hope.

Dear@sarahlou, I do not usually visit this site because I personally have never had seizures. I don't have much to contribute as far as personal experience. I am not a medical practioner, although I have always known friends who did have seizures. Being in Special Education for 18 years, I was always around children who took medication daily for seizures. But while we were on vacation earlier this year, my daughter and I watched a documentary about an extremely low carb diet, a keto diet, actually. The little girl in the documentary greatly reduced the number of seizures she had by adhering to the keto diet. She also had to take much less medication, if any at all. It does not work for everyone. But it has shown so much improvement in so many patients, it might be worth a try. As always, any changes in diet as drastic as that should probably be discussed with one's medical practitioner first. My physician is happy to know how much better I feel on the keto diet. Diabetes Type Two responds very well to the keto diet also. Moods are more level, thinking is clearer. This is my experience, I cannot speak for everyone, obviously. I am so happy to hear that your son is volunteering and staying active. You and your family will be in my thoughts and prayers. Please keep us posted about your son and how he is doing.