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Growing knee pain after 2 knee replacements.

Posted by tierd @tierd, Jun 15, 2018

I had a double knee replacement 1 year ago this July 27 wow the pain just keeps growing.
I don't like pain meds they don't last long enough. My pain specialist wants to burn the nerves he put me on
some medicine called Garlise it worked very well for about 2 weeks now the pain is back even worse than be for
the tops of my feet hurt I can hardly stand why? Any help out there

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lioness | @lioness | Jun 15, 2018

@tierd Do you have a regular PCP? Or a rheumatologist? I would get some other opinions.

REPLY
larrynauta | @larrynauta | Jun 17, 2018

Nov 2012 I had my L knee replaced.
Never correct. Very painful!! Soon after I had a Widow-maker Heart Attack. It took until Dec 2016 to get my Cardiac O.K. to get the failed L knee replacement finally FIXED!! Jan 2017 was the revision surgery. 13 small blood clots were now lodged in my lungs. More pain around my entire knee that I should ever have to deal with also! Now my good R knee is coming apart. Ortho Surgeon says a Replacement is needed. But guess what.?? I got rear ended and my car was TOTALLED!! C5/C6/C7 were fused and from my face to my neck is NUMB. And TAH-DAH that surgery threw two MORE blood clots to my Lungs. “Blood thinners” for life now!! (Ugh!)
So what does my primary care doctor do...?
PULL MY PAIN MEDICINE!?!?!?
I am considering CHANGING my primary care doctor because I can NOT deal with all the pain that my NECK and KNEES are giving me.
(???)
I am SO TIRED of hurting ALL THE TIME!!
And now my pain medicine is gone.
WOW!!!

REPLY
1 reply
maxiesmom | @maxiesmom | Jun 25, 2018

You may have nerve damage from the surgery, or if you waited too long to have surgery. Radiofrequency ablation (if that's what your pain Dr means by burning the nerves) does help. Nerves take years to grow back when they're injured, and grow slower when we're older. My sister-in-law has had hers done three times and she is still in pain, but not as much as before. I now have intermittent pain, it is nerve pain but just comes and goes for no reason I can figure out. I ice a lot and use Biofreeze, and always keep a walker in the van, just in case! I hope you can find some relief, don't give up! Hugs.

REPLY
maxiesmom | @maxiesmom | Jun 25, 2018
In reply to @larrynauta "Nov 2012 I had my L knee replaced. Never correct. Very painful!! Soon after I had..." + (show)
@larrynauta

Nov 2012 I had my L knee replaced.
Never correct. Very painful!! Soon after I had a Widow-maker Heart Attack. It took until Dec 2016 to get my Cardiac O.K. to get the failed L knee replacement finally FIXED!! Jan 2017 was the revision surgery. 13 small blood clots were now lodged in my lungs. More pain around my entire knee that I should ever have to deal with also! Now my good R knee is coming apart. Ortho Surgeon says a Replacement is needed. But guess what.?? I got rear ended and my car was TOTALLED!! C5/C6/C7 were fused and from my face to my neck is NUMB. And TAH-DAH that surgery threw two MORE blood clots to my Lungs. “Blood thinners” for life now!! (Ugh!)
So what does my primary care doctor do...?
PULL MY PAIN MEDICINE!?!?!?
I am considering CHANGING my primary care doctor because I can NOT deal with all the pain that my NECK and KNEES are giving me.
(???)
I am SO TIRED of hurting ALL THE TIME!!
And now my pain medicine is gone.
WOW!!!

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Move to a state that has legalized marijuana!

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Jun 27, 2018

Welcome new members, @larrynauta and @tierd
For additional discussions about total knee replacements, managing pain and rehab, you may also wish to browse the discussions in the Bones, Joints & Muscles group https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/

REPLY
dduke | @dduke | Jun 27, 2018

I had the genicular nerve block done but it did nothing for me. My sister in law says it changed her life. Different results. CBD cream works pretty well for the pain (does not get you high).

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