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Waiting for a kidney transplant

Transplants | Last Active: Mar 19, 2019 | Replies (35)

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@tomkrush

My GFR is down to 23 and l should be down to 20 in few months. My nephrologist refers to Banner as he is part of AHKD. I would like to consider Mayo Arizona as well. Suggestions? Once my referal is accepted and the testing process begins, how long until Surgey? I’m blessed that I have a number of family members as donors that are blood matches.

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Replies to "My GFR is down to 23 and l should be down to 20 in few months...."

Hi @tomkrush, welcome to Connect. You'll notice that I moved your message to an existing discussion about getting close to the time of getting a kidney transplant. I did this so you can meet others who are or were in a similar situation and can offer tips and advice. In addition to this discussion, I think you might find these helpful too:
- Waiting for an altruistic donor https://connect.mayoclinic.org/discussion/waiting-for-an-altruistic-donor/
- Pre kidney transplant https://connect.mayoclinic.org/discussion/pre-kidney-transplant/
- What's a reasonable distance for traveling for a kidney transplant? https://connect.mayoclinic.org/discussion/whats-a-reasonable-distance-for-traveling-for-a-kidney-transplant/

I'd also like to bring @nianyi @kayb @morty and @judyth. Like you Morty is also anticipating a kidney transplant soon at Mayo AZ. There are also several members who have discussed being listed at multiple centers. Fellow members, like @rosemarya and @jolinda, can help answer your questions about timing from referral, through testing to surgery. Tom you certainly are blessed that you have a number of family who could be potential donors. Here is a great blog post that outlines the play by play steps for donors, as well as a first-hand account from @mauraacro
- Countdown to Living Donor Surgery: Key Steps https://connect.mayoclinic.org/page/transplant/newsfeed/countdown-to-living-donor-surgery-key-steps/
- Kidney transplant - The Journey from the Donor's Side https://connect.mayoclinic.org/discussion/kidney-transplant-from-the-donor-side/

Well, I just gave you a ton to read. Sorry about that. Keep posting your questions.

@tomkrush, Hi, Tom. I got my kidney and liver from a deceased donor at Mayo Rochester. The level of care that I received was of exceptional quality and compassion, from the top ranking surgeon thru every rank of staff, and volunteer that I met during my time there.

I am happy that Colleen has already given you some excellent reading material. I want to share 2 short videos from the Transplant Pages. These 2 short videos tell about kidney transplant at Mayo. I think you will enjoy hearing it from these kidney transplant experts. https://connect.mayoclinic.org/page/transplant/tab/resource-35/

@cmael, Do you remember how long you had to wait until your surgery was scheduled?

@cleverusername, Can you share a little about your own transplant experience at Mayo Scottsdale?

@threerrr3, I am thinking of you a lot these days. I hope you have a few free minutes to squeeze one response into your schedule. What do you have to tell Tom about the process of preparing to receive a kidney from a living donor?

Tom, How far away from Mayo do you live? There is transplant housing available that I will share with you when you are ready for it.

@tomkrush You are so fortunate you have living donors that are family members!

I’m waiting for an altruistic living donor.

My advise is to make an appointment now at The Mayo, Phoenix. You do not need to wait until your GFR is 20. I started at 24. I’m now at 18.