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Liver pre-transplant question

Transplants | Last Active: Aug 24, 2018 | Replies (127)

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@rosemarya

@jodeej, There are so many ways that liver failure can show its ugly personality. I transplanted 9 years ago, and while I don't remember all of the bothersome signs and details, I do recall that some came temporarily, and some continued to get worse. The only for sure thing that I am comfortable sharing is that once my doctor told me that we all can show different symptoms with liver disease, even with the same underlying liver condition.

I see that your husband has an appointment coming up pretty soon. I encourage you to call your liver nurse or department whenever there is a concern about his symptoms as they change, particularly if they are affecting day-to-day life. My team always encouraged me to call them between appointments. Liver disease does not follow a scheduled set of appointments. And it is always best to be safe rather than put something off that may or may not be serious.

I know how miserable your husband must be feeling. You are doing exactly what my husband did for me by taking care of him. Prayers for both of you.
Keep in touch,
Rosemary

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Replies to "@jodeej, There are so many ways that liver failure can show its ugly personality. I transplanted..."

@rosemarya I've noticed all the different symptoms. It is crazy that there are so many! I do message the team if I have questions and I have called when I had a concern. So far hasn't mentioned any stomach issues today. I will call or message them if he says anything else.
Thank you, JoDee

I suffered months of vomiting and nausea all most daily. I was given domperidone to be taken 3 x daily 30 mins before each meal. It has greatly improved my digestive system. I also take ondanestron for nause it has greatly improved my digestive system. Maybe these might help your husband. Best to ask your transplant team if these would work for him..my MELD score is 27 and climbing. I hope to get my call soon. Been 8.5 months on wait list. Best of luck to you.

@rosemary That's exactly why I post everything chronologigically as I journey through the donor side of transplants even when it seems a bit akward.