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Kidney stones

Kidney & Bladder | Last Active: Jul 8, 2022 | Replies (124)

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@gingerw

@tracilynn0418 Hello, and thank you for joining us here at Mayo Connect! How did you find us? You no doubt have a lot of experience to share with us, learning to live with recurrent kidney stones. Have they ever researched what type of stones they are, that is, what the stones consist of? I know there are several types, calcium phosphate, calcium oxylate, uric acid, struvite. If they know what type, it may be of use to your medical team for treatment, especially if they are recurring.

My dad was prone to kidney stones, and had lithotripsy several times before his spine surgery. From then on, he could only do a medication. My sister had lithotripsy once for a stone. Several decades ago I had one stone, but passed it.

Having Stage 3 kidney disease usually means some form of medication, dietary restrictions, and a careful watch on bloodwork every 3months or so. Your atrophic kidney highlights the need to be careful. If you are comfortable, would you share what you are doing to manage your disease, and tell us how we can support you? We are not medical professionals, but will share support and experiences!
Ginger

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Replies to "@tracilynn0418 Hello, and thank you for joining us here at Mayo Connect! How did you find..."

I have been at stage 3, close to 4, for 8 years. First and foremost is diet, consisting of limited sodium and trying to save protein for dinner. Forget the salt shaker. Protein it is mostly chicken breast and fish, usually salmon or tuna. My wife is good at preparing chicken all kind of ways. I’ve discovered plant protein, especially eggplant. Very infrequent redmeat, organ meat, turkey, or pork is OK as long as it’s not heavily salted. We also get sushi from time to time, which can be a good source for unprocessed healthy protein. But I stay away from shellfish and heavily salted fish, like hearing. Cheese is another thing to watch out for and alcohol must be rare. I hope this helps.

Hi, honestly I just found this my looking things up online! Currently I take potassium citrate four tabs daily for now is what he is using to hopefully slow down the progression of kidney disease because he believes due to frequent stones and surgeries that what lead to kidney disease. I've been maintaining low salt diet way before I ever had kidney disease due to the stones etc and I try to make sure I am drinking 2-3 liters a day if possible. Anyways just looking for advice at times. Has anyone had a kidney transplant before they needed to start Diaylisis? Or do most places or doctor's wait til you are so bad mostly because I struggle dealing with getting out of bed daily to go to work even......since being diagnosed the depression can be overwhelming at times. So if I were to have a living donor would they be willing to even consider it since having the only one kidney makes it life threatening if I get stones anymore at all if it were to become blocked or maybe I am just overthinking everything......well anyone let me know your thoughts thanks