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Welcome @canadiancottager
There are several members who have had treatment with Keytruda. See this discussion here:
- Keytruda https://connect.mayoclinic.org/discussion/keytruda/
I'm also inviting @alpaca @adriennef @angelag @karly and @gaybinator into this discussion. CanadianCottager, we wait for others to join the discussion, can you tell us a bit more about you and your mom. Has she had surgery? How are you doing? How is she doing?
Replies to "Welcome @canadiancottager There are several members who have had treatment with Keytruda. See this discussion here:..."
Hello @canadiancottager ! Welcome to Connect.
I am so sorry to hear about the c-diff on top of an already difficult diagnosis! C-diff can be debilitating. While I don't have much experience with melanoma, I have heard great things about immunotherapy for melanoma. I am hopeful that your mother has a wonderful response. When I was treated with immunotherapy, I got really high fevers, but not much else as far as side effects. How often are her treatments? Does she suffer from pain when eating?
She has only had one treatment and the second one was postponed secondary to weight loss and severe fatigue. She is unable to eat mainly due to nausea which hasn’t been successfully treated.
She doesn’t have pain when swallowing but can feel the food going down due to the restriction.
Would really like some advice on nausea medication. Also she can’t swallow pills so must be in liquid form.
Has she tried Zofran and/or Compazine? Those are the go to meds that I have been on. Zofran melts in the mouth. I had compazine pills, but many meds come in liquid form. I would check with the doctor and pharmacist. Also, I’m not sure where you are located, but medical marijuana was a real lifesaver for me. It really helped with nausea and appetite. There is also a synthetic version that my doctor prescribed before medical marijuana was legal in my state. She has all my empathy though. I had c diff as I started chemo and it was so awful. I’m sorry that she has to deal with it right now. What has she tried already for nausea?
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My is 89 years old. She has had one treatment of Keytruda IV. Her second treatment is in a few days. The doctor said it is stage four with just one lymph node involvement. Unfortunately she is being treated for c-diff with flagyl and is quite nauseated and fatigued. She had lost a lot of weight and doesn’t have an appetite.
I am wondering about any other adjuvant therapies. She is too old for surgery and will unlikely agree to chemo.
She was healthy before this diagnosis which is why the treatment was offered.
Melanoma of the esophagus is very rare and I would like to find others who have had treatment with immunotherapy.