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Treatment for Stage IV Ampullary Cancer

Posted by Mike @meppard, Dec 1, 2017

I have stage IV cancer of ampulla of Vater, mets to liver. It is rare because it is small cell. Have had my regimen of chemo, would like surgery to remove tumor, hippec after. Ablation of liver tumors. Pinpoint radiation.

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Mike | @meppard | Feb 8, 2018
In reply to @linnythepoo "Hi @meppard , I am hoping to get into a Rova-T clinical trial too. I have..." + (show)
@linnythepoo

Hi @meppard ,

I am hoping to get into a Rova-T clinical trial too. I have periampullary cancer with mets to liver. Were you tested for DLL3 protein?

Jump to this post

Lost my place in the Rova T clinical trial, which has devastated me. Could have shortened my life significantly.

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Feb 9, 2018
In reply to @linnythepoo "Hi @meppard , I am hoping to get into a Rova-T clinical trial too. I have..." + (show)
@linnythepoo

Hi @meppard ,

I am hoping to get into a Rova-T clinical trial too. I have periampullary cancer with mets to liver. Were you tested for DLL3 protein?

Jump to this post

@meppard Hello Mike:

I understand your devastation! I do hope the oral chemo works well on this new lesion.

I look forward to hearing from you again.

Teresa

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Apr 19, 2018
In reply to @meppard "I have had ampulla of vater small cell cancer with Mets to the. Went through my..." + (show)
@meppard

I have had ampulla of vater small cell cancer with Mets to the. Went through my regimen of chemo, waited 3 months to qualify for RovaT trial, after waiting so long finally qualified for studied. Yesterday I was supposed to start. My regular oncologist wasn’t there so another came in and told me there was small lesion on my MRI, they aren’t sure what it is but knocked completely out of the trial. Will take huge amounts oral chemo for six weeks then another MRI, I doubt I can get back there was a waiting. I’m so pissed! Instead of sainting for 3 months, I could have liver ablations, proton beam to the pancreas. Also I believe we could have done a CT guided biopsy, and know what is was right at that time.

Jump to this post

Hello @meppard

I have been thinking about you and wondering how you are doing with the oral chemo that was to start in February. I hope that it is effective against the recent lesion.

I look forward to hearing from you again.

Teresa

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 31, 2018
In reply to @meppard "I have had ampulla of vater small cell cancer with Mets to the. Went through my..." + (show)
@meppard

I have had ampulla of vater small cell cancer with Mets to the. Went through my regimen of chemo, waited 3 months to qualify for RovaT trial, after waiting so long finally qualified for studied. Yesterday I was supposed to start. My regular oncologist wasn’t there so another came in and told me there was small lesion on my MRI, they aren’t sure what it is but knocked completely out of the trial. Will take huge amounts oral chemo for six weeks then another MRI, I doubt I can get back there was a waiting. I’m so pissed! Instead of sainting for 3 months, I could have liver ablations, proton beam to the pancreas. Also I believe we could have done a CT guided biopsy, and know what is was right at that time.

Jump to this post

@meppard Hello Mike

I hope that your chemo treatments have been helpful. How are you doing?

Teresa

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 31, 2018
In reply to @meppard "I have had ampulla of vater small cell cancer with Mets to the. Went through my..." + (show)
@meppard

I have had ampulla of vater small cell cancer with Mets to the. Went through my regimen of chemo, waited 3 months to qualify for RovaT trial, after waiting so long finally qualified for studied. Yesterday I was supposed to start. My regular oncologist wasn’t there so another came in and told me there was small lesion on my MRI, they aren’t sure what it is but knocked completely out of the trial. Will take huge amounts oral chemo for six weeks then another MRI, I doubt I can get back there was a waiting. I’m so pissed! Instead of sainting for 3 months, I could have liver ablations, proton beam to the pancreas. Also I believe we could have done a CT guided biopsy, and know what is was right at that time.

Jump to this post

Hello @linnythepoo

In your last post you were hoping to be involved with the Rova-T clinical trial and I was wondering if you were part of that trial now?

I would enjoy hearing from you. How are you feeling these days?

Teresa

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