Mayo Presentation at the Northwoods NETs group - 1/14/18

Posted by Tom Wilson @tomewilson, Jan 20, 2018

Dr. Thor Halfdarnarson, a medical oncologist from Mayo Rochester, discusses the team approach at Mayo and best practices for the diagnosis, management and treatment of neuroendocrine tumors. Thor is accompanied by physician assistant Rachel Eiring, a member of the neuroendocrine cancer team at Mayo Rochester. https://youtu.be/B_PEkYN9Yz4

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Tom Wilson | @tomewilson | Jan 20, 2018

This is a written summary of the meeting.

Shared files

Northwoods NETs Meeting (Northwoods-NETs-Meeting.pdf)

Teresa, Volunteer Mentor | @hopeful33250 | Jan 20, 2018

In reply to @tomewilson "This is a written summary of the meeting." + (show)

Hi Tom, @tomewilson

Thank you for the Youtube and attachments from the conference. I'm looking forward to seeing them!

@amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727 @dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15 @gman007 @mollie59 @amani79 @collielady @somefan @debf @immmm @kenlucier @somefan

debf | @debf | Jan 21, 2018

In reply to @tomewilson "This is a written summary of the meeting." + (show)

Thank you so much for sharing this with us!!

mollie59 | @mollie59 | Jan 24, 2018

Thank you so much, Tom. I was in attendance, my son took me and found it very interesting. I will forward the link to my other 2 sons and my husband to watch. Very informative

Teresa, Volunteer Mentor | @hopeful33250 | Jan 24, 2018

In reply to @mollie59 "Thank you so much, Tom. I was in attendance, my son took me and found it..." + (show)

@mollie59 Hello Mollie:

I'm glad that you were able to attend and found the presentation informative.

I've been thinking about you and wondering how you are feeling since your heart surgery? As I recall, you had some complications and I hope you are recovered now.

If you are comfortable doing so, please send us an update as to how you are doing.

Teresa

mollie59 | @mollie59 | Jan 25, 2018

In reply to @mollie59 "Thank you so much, Tom. I was in attendance, my son took me and found it..." + (show)

Hello, here is an update. Sept 21 heart surgery to replace two valves in my heart. 2 days later a carcinoid crisis/storm causing my body to crash. Renal failure from all the drugs used, causing my kidneys to shut down. Dialysis for 6-7 weeks and Oct.31 I was taken off dialysis completely. Dec. 12, Jan. 4 & 11 thoracentisis procedures to drain the fluid build up in the sac around my left lung. Fluid was negative for cancer. MRI w/out contrast on Dec. 13 showed my caracinoid liver cancer to be stable, I continue with 40 mg sandostatin every 28 days. i am trying to regain my strength so in March I can have a MRI with contrast. My symptoms from carcinoid are under control with the sandostatin with minor issues the last few days before my injections. i am on the mend slowly,just so thankful the dialysis was short lived and my kidneys are regaining their strength. I pray daily for each and everyone fighting their own battles with their health. Carcinoid cancer is a hard one to understand and even hard to explain to others. Have a great day, everyone! Stay positive
Sincerely,
Mollie

Gary, Alumni Mentor | @gman007 | Jan 25, 2018

Your positivity in the face of such adversity is in the SUPERHERO range. You have my prayers and I know they are heard, but your resilience may be the reason you beat this and live a long time and enjoy the rest of your life. It is hard to imagine how silly I feel when I whine about my stomach hurting, or my pancreas or anything else that is so much less than what you are dealing with 24/7. APPLAUSE and not the golf clap kind either; full out celebration for someone who sees the world through the lenses you do when they could be so much darker and everyone would understand. Blessings for the future!

Teresa, Volunteer Mentor | @hopeful33250 | Jan 25, 2018

In reply to @mollie59 "Thank you so much, Tom. I was in attendance, my son took me and found it..." + (show)

@mollie59
Mollie,

I'm so glad to get your report and to know how much progress you have made! I'm sure you are relieved to be off dialysis and getting your strength back. I'm especially pleased that the fluid showed no cancer and that the liver carcinoid is stable. Keeping carcinoids stable is really the best news yet. I'm so happy for you!

Teresa