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seancaden (@seancaden)

Seizure control: I can't seem to get any help

Epilepsy & Seizures | Last Active: Sep 14, 2018 | Replies (35)

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@national

I’ve felt really discouraged also, feeling like I am not getting help. Like the Dr. has just sort of given up. He pushed for a Lobectomy right off the bat, but when I went to MAYO for a 2nd opinion and EEG, they saw that the complex seizures were coming from both sides of my brain.
Then he pushed VNS, but the success stats didnt look promising. Now he’s pushing RNS. Seems like he just wants to try anything invasive just for fun. Every time I ask for non surgical options, he loses interest and won’t give me an opinion about it.

Anyone out there have experience with RNS? Or successful dietary treatments along with meds?

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Replies to "I've felt really discouraged also, feeling like I am not getting help. Like the Dr. has..."

Try a third opinion, or a fourth. The brain is like unexplored territory for most doctors, because they may never have studied it in med school or it wasn't offered. Sixty years ago almost no one believed the brain could get sick, but it can and it does. Do not give up. Do all the research you can then find a doctor who will work with you. Good luck. mlmcg

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