← Return to Referral to Mayo for Autoimmune or Unknown Condition

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@bryan_in_dallas

Thank you for the detailed reply, but it’s all been checked. Like I said I’ve been to approx 20 doctors / specialists in Dallas. I’ve had MRIs and CT scenes of my brain, neck, lungs (incl mid back), lower back, tail bone sacroiliac joints. I’ve had xrays of a lot more, plus a spinal tap.

On a related note, I was very sick and diagnosed with JRA (systemic) in 1975, when I as 13. I’ve even gotten the old medical records fro University of Iowa and added them to my growing 3 inch thick folder of medical history.

On a side note, I’m a civil engineer…Vice President at an engineering firm…I read and research ferociously and I’m geared to analyzing and solving all sorts of problems. I asked tons of questions and, like I said I’m on my 6th rheumatologist (two of which have national credentials as being top in their field) and have seen 5 neurologist, plus pulmonary, vascular, cardio, and even a dermatologist who specializes in connective tissue / autos immune disorders. I’ve seen allergists, pain management doctors and on and on. Still none can determine why I hurt in every muscle of my body, every day, and have massive inflammation.

My Internist is married to a Rheumatologist, who is partners with one of those two nationally recognized rheumatologists that I mentioned. Everyone….EVERYONE…has run out of ideas. So Mayo was my last chance at trying to find a way to feel better. I’m 56 with high school aged kids and I now very painfully walk with a cane and can’t muster the strength or deal with the pain, after a long day of work, to even attend their baseball and volleyball games.

So Mayo thumps their huge chest claiming they take on the toughest of the tough cases…..which I truly lfeel I am. Yet, they took a pass. No interest….can’t help. Short email with do not reply. When I called their internal medicine group the nice young man told me they have more cases than capacity and blah, blah, blah. Sorry to sound bitter, but I am. I will also make it my passion to tell people what a crock of shit they are, when it gets to real difficult cases. This is un acceptable, and completely against EVERYTHING I’ve ever thought of the Mayo Clinic. Fuck ‘em. They’ve TOTALLY AND COMPLETELY LET ME DOWN.

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Replies to "Thank you for the detailed reply, but it’s all been checked. Like I said I’ve been..."

Hi @bryan_in_dallas, I cautiously reply to your post as I'm afraid that my response merely adds to the blah, blah, blah that you've already heard. Unfortunately, I do not have the power to grant you the appointment you desire. Your need is dire and your hopes were laser focused on Mayo Clinic. This is obviously completely and utterly frustrating and bitterly disappointing. I just want you to know that I read your posts and I hear you. These words ring hollow, I'm sure, but they are meant sincerely.

Hi @bryan_in_dallabryan_in_dallas

I just read your posts. Have you tried Dr. Robert Katz at Rush University Medical Center in Chicago. Illinois? He is rated the top rheumatologist (in the top 1%) in the country. Once u get an appointment with him, just know that when u arrive for your appointment, the waiting room will be full and there may be a wait of an hour or so, but it is well worth it and he is phenomenal! He has his own lab in the office, his own days, and MRI just a floor above. He makes everything convenient for the patients. Like you, he is also a researcher and has written numerous scientific papers. I hope this helps and good luck to you!

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