← Return to Referral to Mayo for Autoimmune or Unknown Condition

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@fox940

@kspiel You are not alone. I received an email on Monday and my referral was denied as well. I called yesterday morning and couldn’t be given a satisfactory answer on why I was denied appointment. I understand that Mayo sees millions of people a year and helps many people, but they certainly didn’t even attempt to help me. It has left a bad taste in my mouth as all I am trying to do is seek answers for the diagnosis I have been given of Chronic Pain Syndrome. No one can help me and it is disheartening, I can only help myself. When you go to Mayo’s website the Request an Appointment link is hard to miss and it is even on this site of “Request Appointment.” Underneath Request Appointment it needs to read “Maybe You’ll Get One'”

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Replies to "@kspiel You are not alone. I received an email on Monday and my referral was denied..."

It is best to have one of your medical specialist call to have physician consult. They should compile and forward lab results that are reflective of your most predominant symptoms as well as a comprehensive medical report, prior to their conversation with the appropriate doctor.

It took almost 4 1/2 years for me to be diagnosed with two extremely rare disorders. Although my case is “complicated” per the doctors, and I have a team of specialist, my neurologist contacted the Mayo Clinic; because my dominant symptoms were related to autonomic dysfunction. My diagnoses falls under the Neuro-Immunology sub-specialty. I think it would also have been appropriate for my Immunologist to contact them. My point is that I think it might help to focus on your main symptoms and think of the doctor who knows your journey the best and can tell your story from a medical perspective.

I hope this helps. I don’t know you but I am praying for all of you. I know what it is to suffer. Please remember that what we think, feel, and believe affects our health and becomes our reality. I believed I would find an answer and I now believe that I will be healed, despite being told the disorders are progressive and incurable. Doctors are perplexed at my current state, despite my having almost died, in April 2017. They are astounded that I am not bedridden, after going undiagnosed and untreated this long. Although everyday is a struggle, I have come a long way and believe I will get to the other side of this. I attribute my current condition to prayer and mediation, very clean eating, walking or movement of some kind 20 minutes at least 3-4 times per week, working through various childhood and adult trauma and restorative yoga.

Our bodies possess the capacity to heal itself, if we believe and begin to make changes that lead to health. Yes, it’s hard to think about doing anything when you feel so badly. But the human spirit is powerful! Food is medicine. So, perhaps start with eliminating processed foods, dairy, gluten, sugar, soy, oils except for avocado, coconut and olive oils. A plethora of research has concluded all these are inflammatory and bad if you have autoimmune disorders.

I also recommend the following books…if you haven’t already read them…from well-educated MD’s who have switched from traditional allopathic medicine to functional medicine, which looks for the why and not just the what of our conditions:

The Biology of Belief, Bruce Lipton

Mind Over Medicine, Lissa Rankin

Food: What the Heck Should I Eat, Mark Hyman

Sending Love and Light to you and praying that you not only find answers but you receive relief.

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