@cognac, we have some very active, insightful discussions in the "Lung Health" group on Connect, which you may wish to go through: https://connect.mayoclinic.org/group/lung-conditions/
May I ask if you would share a few more details about your lung health, and why you need back surgery?
@patriciapatricia, may I ask what brings you to Connect? We look forward to getting to know all of you.
@cognac, we have some very active, insightful discussions in the "Lung Health" group on Connect, which you may wish to go through: https://connect.mayoclinic.org/group/lung-conditions/
May I ask if you would share a few more details about your lung health, and why you need back surgery?
@patriciapatricia, may I ask what brings you to Connect? We look forward to getting to know all of you.
kanaazpereia, Did I respond to your questions sufficiently? Do you need more information on my lung health or need for back surgery? I so, please let me know.
@cognac, we have some very active, insightful discussions in the "Lung Health" group on Connect, which you may wish to go through: https://connect.mayoclinic.org/group/lung-conditions/
May I ask if you would share a few more details about your lung health, and why you need back surgery?
@patriciapatricia, may I ask what brings you to Connect? We look forward to getting to know all of you.
As @kanaazpereira mentioned, I have had 2 cardiopulmonary exercise tests and it is a good test, especially where breathing problems are concerned. It is different than the traditional stress exercise test in that you wear a facial mask apparatus over your mouth and your oxygen levels are recorded as well as the EKG (heart information). You will probably need to visit a larger medical center in order to have this test. Here is some information from Mayo regarding this test, http://www.mayoclinicproceedings.org/article/S0025-6196(11)60946-4/pdf
I would certainly recommend a second opinion. How long have you had this problem?
After another hospital stay, diagnosed with UTI-feeling better as yesterday went shopping & to my appointment at the clinic.Tried to make dinner, but had a relapse, starting to sweat & the same old tired feeling! Guess I overdid it!!
As @kanaazpereira mentioned, I have had 2 cardiopulmonary exercise tests and it is a good test, especially where breathing problems are concerned. It is different than the traditional stress exercise test in that you wear a facial mask apparatus over your mouth and your oxygen levels are recorded as well as the EKG (heart information). You will probably need to visit a larger medical center in order to have this test. Here is some information from Mayo regarding this test, http://www.mayoclinicproceedings.org/article/S0025-6196(11)60946-4/pdf
I would certainly recommend a second opinion. How long have you had this problem?
I see that this is your first post on Connect, welcome!
You are concerned with shortness of breath and diastolic insufficiency. How long have you been having this problem? Has your doctor given you any meds or other treatments to help with this problem?
@gibbs Hi, gibbs. I also have chronic shortness of breath, and one way to list it is chronic diastolic insufficiency. In my case, the doc says my ATTRwt is probably the cause (cardiac Amyloidosis related to TransThyRetin transport). Just a suggestion. If you are over, say, 30, ask your doc to order a SERUM FreeLite(c) protein assay, and a PEP. Both must be done by top labs, such as Fred Hutch in Seattle, ARUP in Salt Lake, Mayo-MN, Mass General. If the result of either is out or the reference range, or even showing ANY substantial amount of protein in your serum or urine, it can be an early warning of very serious Amyloidosis. It is a slowly progressing disorder, starting with a single cell, and doubling every few hours, and leaves dead cells in its wake, and eventually causes death. It can be treated, but not stopped. Just slowed down. It normally begins to show anytime, but usually not before age 40.
I just found out I have this condition. I had a stent placed in my left subclavian artery.. I mentioned that my symptoms have not come back but that I was still really out of breath with the least exertion. My doctor pulled up an echo from two years ago and said it showed diastolic insufficiency. I am scheduled for a new echo in two weeks. I also saw it written in my appt review that I have chronic diastolic congestive heart failure. That is why I am having a new echocardiogram. Not sure why this was missed since I kept telling them that I also get chest pain and palpitations. So I am in a waiting game to find out more. I think I am going to go to Mayo 's for a second opinion. I am on a beta blocker, a calcium channel blocker, a statin, a blood thinner and an aspirin. Thank you for the nice information. I will ask my cardiologist to order those tests. Please take care and thank you for responding. I am new at this posting program. Gibbs.
@gibbs Hi, Gibbs. Glad to try to help. After all, we are all new at this. Every day is new, and my first computer was counting spigots on a cow...1,2,3,,,,,,4! Next was a pencil and a piece of board or mom's new white tablecloth. Anyway, there is a lot more to learn, I hope. Every day I read "Science Daily", and am amazed at the stuff I have never even heard of previously.
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patriciapatricia - In response to your question, I'm seeing a therapist for Depression and she suggested it.
kanaazpereia, Did I respond to your questions sufficiently? Do you need more information on my lung health or need for back surgery? I so, please let me know.
kanaazpereia, I forgot. Thank you for suggesting joining the lung group. I'm going there now.
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1 ReactionAfter another hospital stay, diagnosed with UTI-feeling better as yesterday went shopping & to my appointment at the clinic.Tried to make dinner, but had a relapse, starting to sweat & the same old tired feeling! Guess I overdid it!!
Sounds like you've been through this routine a few times, so probably know what next step is. If like me, it is back to the doctor and meds.
I was told my shortness of breath was chronic diastolic insufficiency.
Hello @gibbs
I see that this is your first post on Connect, welcome!
You are concerned with shortness of breath and diastolic insufficiency. How long have you been having this problem? Has your doctor given you any meds or other treatments to help with this problem?
I look forward to hearing from you.
Teresa
@gibbs Hi, gibbs. I also have chronic shortness of breath, and one way to list it is chronic diastolic insufficiency. In my case, the doc says my ATTRwt is probably the cause (cardiac Amyloidosis related to TransThyRetin transport). Just a suggestion. If you are over, say, 30, ask your doc to order a SERUM FreeLite(c) protein assay, and a PEP. Both must be done by top labs, such as Fred Hutch in Seattle, ARUP in Salt Lake, Mayo-MN, Mass General. If the result of either is out or the reference range, or even showing ANY substantial amount of protein in your serum or urine, it can be an early warning of very serious Amyloidosis. It is a slowly progressing disorder, starting with a single cell, and doubling every few hours, and leaves dead cells in its wake, and eventually causes death. It can be treated, but not stopped. Just slowed down. It normally begins to show anytime, but usually not before age 40.
I just found out I have this condition. I had a stent placed in my left subclavian artery.. I mentioned that my symptoms have not come back but that I was still really out of breath with the least exertion. My doctor pulled up an echo from two years ago and said it showed diastolic insufficiency. I am scheduled for a new echo in two weeks. I also saw it written in my appt review that I have chronic diastolic congestive heart failure. That is why I am having a new echocardiogram. Not sure why this was missed since I kept telling them that I also get chest pain and palpitations. So I am in a waiting game to find out more. I think I am going to go to Mayo 's for a second opinion. I am on a beta blocker, a calcium channel blocker, a statin, a blood thinner and an aspirin. Thank you for the nice information. I will ask my cardiologist to order those tests. Please take care and thank you for responding. I am new at this posting program. Gibbs.
@gibbs Hi, Gibbs. Glad to try to help. After all, we are all new at this. Every day is new, and my first computer was counting spigots on a cow...1,2,3,,,,,,4! Next was a pencil and a piece of board or mom's new white tablecloth. Anyway, there is a lot more to learn, I hope. Every day I read "Science Daily", and am amazed at the stuff I have never even heard of previously.