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Post-MALS surgery

Digestive Health | Last Active: Dec 10, 2023 | Replies (71)

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@kariulrich

@ruudolpho welcome! I am sorry I missed your post, however your timing is great as I have been asking the same questions to another group I am on called MalsPals (Facebook). My quick history: I had celiac bypass in 2009 with removal of ganglion tissue and bovine patch angioplasty of my hepatic/speanic artery. Had a second surgery (2105) due to MALS symptoms returning, revision done of my bypass, removal of scar tissue etc. Approximately 1 month ago had celiac block due to pain returning, that helped about 60 percent but the pain has slowly returned, sometimes the pain can be quite severe. Tramadol has been a great help to me preventing the pain. Doctors are reluctant to prescribe Tramadol, which I completely understand. One doctor mentioned starting on a calcium channel blocker. I started on Norvasc about 3 days ago and I have noticed it is beginning to help. I have a history of Fibromuscular Dysplasia (vascular disease) and Ehlers-Danlos Syndrome which complicates my case. In my humblest opinion, 3 months is still in the early part of your recovery. Each surgery took me approximately a year to recover fully from. Surgery relieved the pain I had, but not the bowel issues. I do not regret either surgery, I am very grateful I had the option to have surgery as it gave me back my quality of life for many years. From my experience you will gain strength slowly! It is important to keep eating 5-6 small meals a day, including a protein in each small meal.... again frequent small meals. I think in time you will be able to tolerate more nutritious foods as you heal however the process is slow, be patient. The second thing I highly recommend is walking, even if you are weak. I walked 2-3 times a day, very short distances... a 1/2 a block and worked my way up to being able to walk around the block 2-3 times, WITH ASSISTANCE! I was also very weak, and I had to hold onto my husband or son's arm for several months. It is a commitment for both you and your family or friends. Maybe for you it would be best to walk a loop around the house (Indoors) I started out walking in circles in my kitchen and living room, kinda funny because all of my cats and dogs would follow right behind me- a mini parade! I know this sounds overwhelming but take one moment at a time. I am hopeful you will get some relief as I did, but you have to be very patient because healing is slow. There is a very limited amount of published material on MALS, unfortunately we have a lot more work to do in the area of research. I will see if I have anything current I can post for you. Please feel free to ask questions and know that we are with you in this journey.

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Replies to "@ruudolpho welcome! I am sorry I missed your post, however your timing is great as I..."

Thank you Kari for your kind support.
You are doing a wonderful and kind thing, helping others with MALS.
Louis

@ruudolpho please keep me updated how your progress is doing, It is such a difficult and long recovery.

Hi! I had Mals syndrome surgery in August. It was a unique surgery it was a severe celiac artery stenosis & underwent complex diaphragmatic crus resection intra-operative celiac stenting. It was last Aug and I'm still not driving. My family isn't understanding my daughter said I can't solve problems because " she can't figure out how to drive" obviously she doesn't get it. Have anyone else had a problem with family being critical of recovery time? I doing well considering I walk up to 10,000 steps usually 5 plus days a week. The not able to drive is "the" hardest thing for me now! How long is the recovery as far as driving is concerned? I am having pain under my left breast. My surgeon said it could be my colon causing the pain
I have bloating everyday I look like I'm pregnant. I look kind of normal looking in the morning. When I eat anything it starts up again. I can eat but get nauseas? Can you or anyone else help me out? I'm guessing it will be up to a year before I'm healed? I'm looking forward to
reading more experience's & learning!