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Parsonage turner syndrome *

Brain & Nervous System | Last Active: Oct 25, 2023 | Replies (237)

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@lisalucier

Hi, @shazzah73 - welcome to Mayo Clinic Connect. I can imagine it would be concerning to wonder if your Parsonage Turner Syndrome (PTS) has returned, with the pain in your shoulder and radiating down your arm and a tender spot on your shoulder. Hoping that some of the members in this discussion may have some input for you, like @tmachian @confused1955 @patrick17 @survivingpts @jjspokane61 @chriso12345.

Have you had the chance to talk to your doctor's office about these symptoms, @shazzah73?

@adriennes - hoping that some of these same members I've tagged here will let you know if they have experienced the effects of PTS in the medial, ulnar and radial nerves, leaving them with prolonged pain, denervation, extreme weakness.

@adriennes - how have you managed your PTS thus far?

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Replies to "Hi, @shazzah73 - welcome to Mayo Clinic Connect. I can imagine it would be concerning to..."

@adriennes I am also female and most of my issues are in my median nerve in my right forearm and hand. I have significant and severe nerve damage in my hand. Plus the wasting of pronator in forearm. Also anterior interosseous syndrome.This started last September and is continuing to be a problem. I will say that things are gradually getting better. At first the ends of my fingers were so hypersensitive that I couldn’t stand touching anything, particularly metal. Since I spend my workday at a computer typing was terrible, and I spent several weeks typing one-handed. I still can only use the mouse with my left hand so that’s been fun since I’m right handed. The other thing that’s been helpful is that I am a remote employee so no one in my office really knows what I went through. Although that’s a double-edged sword because I think if I was in the office I would’ve been on disability instead of doing nothing but work and then sitting on the couch with a heating pad for a number of weeks. It’s like I lost about two plus months of my life, but I’m not going to complain too much because many folks here have it much worse. PT was great, best thing about it was understanding that it’s necessary to push myself to get better. Are you able to do any PT yet?