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@mena2020

My diagnosis is CLL/SLL , Hashimoto and Hypogammaglobulinemia. Having frequent infections. I don’t have any treatment yet because the doctor isn't clear if I should begin or not...but Lymphomas are manifesting more aggressively in my case and inflammation episodes cause scary neurological symptoms. Can anyone tell me how do I qualify for Cart T cell therapy or what is the protocol for it? I have extreme allergies and sensitivities to medicines, and everything. I am afraid to take Imbruvica and since the doctor refuses to start me with a lower dose. I react badly to MRIs contrast and even iodine. I am terrified every time they mention any drugs because I could die from medicines reactions...I need guidance on treatment and which doctor I should see aside from my Hematologist to support the immune deficiency (or suspected plasma deficiency) Where do I get this treatment and if anyone knows a the name of a good doctor ???

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Replies to "My diagnosis is CLL/SLL , Hashimoto and Hypogammaglobulinemia. Having frequent infections. I don’t have any treatment..."

Hi @mena2020, welcome Mayo Clinic Connect. Several members of the CAR-T therapy group went to Mayo Clinic for treatment, like @grandpabob @raemark @greta_k @annmillercarr @valerie912 and @cherylbogdan. I'm not sure which location however.

Here is more information about the CAR-T cell therapy program at Mayo Clinic, which includes a list of specialists https://www.mayoclinic.org/departments-centers/car-t-cell-therapy-program/sections/overview/ovc-20404319

You may also be interested in the Hematology blog, which features several posts about CAR-T https://connect.mayoclinic.org/page/hematology/

This is a good one to start with:
- CAR-T cell Therapy: What is it and what does it treat? https://connect.mayoclinic.org/page/hematology/newsfeed-post/car-t-cell-therapy-what-is-it-and-what-does-it-treat/

Mena, I'm unclear from your posts. Are you a candidate for CAR-T? It is my understanding that CAR-T therapy is currently only approved for B-cell ALL and B-cell non-Hodgkin lymphoma.