Hello @tealover102 Nice to e-meet you here. I am Scott and I was the primary caregiver for my wife during her 14+ year war with her brain cancer.
You are in a good place here at Connect! You will find many fellow caregivers here who have been through or are on the journey also. We are an open group with good listening, broad shoulders, and along the way many hints and tips regarding what we each have learned along the way to help with some of the demands of caregiving.
We were in a smaller town and finding any affordable resources to help was also a profound challenge for us. Is your husband a veteran perhaps? The VA does have some good programs. Perhaps something like Meals on Wheels could also provide some relief. I know caregiving takes up 99.9% of a person’s time and many things fall by the wayside as we focus on the overwhelming needs of our patients. At least it did with me. My Neatnik ways were the first to fall by the wayside with me!
I was fond of saying I was married to one woman for 41 years, but married to many different people as her condition changed due to her tumor. I tired to tell myself to remember it was the disease at play, not my wife. That only worked part-time I will say. I also kept a pillow in our living room that I frequently took to punching and crying in when I was overwhelmed. I found Connect one of the times I was overwhelmed by the isolation of caregiving. It was a wonderful discovery for me and I hope it is for you as well.