← Return to Permanent SIBO due to removal of ileocecal valveDiscussion
Permanent SIBO due to removal of ileocecal valveDigestive Health | Last Active: May 25 5:53pm | Replies (172)
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Replies to "Hi everybody :) I know this is an old thread, but I found it when searching..."
I would also like to recommend that you read through the Connect discussion at, https://connect.mayoclinic.org/discussion/sibo-diet/ and also https://connect.mayoclinic.org/discussion/tips-for-managing-chronic-small-bowel-obstructions/?orderby=DESC#chv4-comment-stream-header. If you click on these links you can read what others have reported. I would especially like to invite, @thull, @nancybev and @drpepper. They have been actively discussing diet and lifestyle changes as a result of their surgeries.
rachel_b – I had an emergency surgery and basically lost the same section of bowel as you did, back in 2003. I had major trauma and just went back in to have the adhesions removed to improve life. I'm a week out of that surgery and researching how to resolve my other problem… SIBO. The previous attempts haven't worked Xifaxan or herbal. Latest stool tests from about a year ago showed I had hydrogen and methane producing bacteria, which were better gone after with Xifaxan and neomycin… see an article on it below. I have yet to try it but hope to soon. My insurance changed and Xifaxan went from $15 per 2 week bottle to $1500 per 2 week bottle so I'm debating on when to give this a shot. (turns out as a new user I cannot post links, so search xifaxan and neomycin and it's near the top of Google results)
I also started looking to see if an ileocecal valve replacement was an option but net searches only show research on rats. Anyone know if this technology has been proven?
Rachel, I can only imagine how frustrated you must be. It's so hard when food and our bodies are at odds with each other. The only thing I can add here is that I have been unable to get off Xifaxan because the symptoms always return– gas, bloating, loose stools, discomfort. So finally my dr got a special dispensation for me through my insurance company to pay for it long term, like indefinitely. I I take 3 550mg tablets a day and it keeps things working right. I also take Align every day. Three is no way for the bacteria to keep from populating in our small intestines since we have wide open anastomoses from our resections. The best of luck to you.