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haaskencal avatar

Vyalev injection pump. Anyone else on this?

Parkinson's Disease | Last Active: 3 days ago | Replies (7)

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @haaskencal,

I would like to join @lisalucier in welcoming you to the PD support group on Mayo Clinic Connect. We do have other members who have posted about using Vyalev, and many have reported good results. I'd like to invite @spatase, @jatonlouise, @noe73, and @wkrebs59.

You mentioned that you no longer have stomach issues. Have any of your PD symptoms been reduced or helped with this new way of treating PD?

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Replies to "Hello @haaskencal, I would like to join @lisalucier in welcoming you to the PD support group..."

@hopeful33250 Hello. My husband did not start using Vyalev. He is currently using an Inbrija Inhaler to help with 'off' periods. To date, he has not seen any significant improvements. His stomach issues; however, he is addressing the old fashioned way. . . . he makes sure he moves every hour - whether walking upstairs and back or walking around the house (this keeps the stomach mobile and awake), he eats two or three animal crackers or graham crackers every hour (this also keeps the stomach awake), he drinks a cup of warm chamomile tea 15 minutes before each Carbidopa/Levodopa dose (this actually helps open the flap at the bottom of the stomach leading into the intestines) and he only eats protein for his evening meal. All of these things help the stomach absorb and push the Carbadopa/Levodopa through the stomach and into the intestine. He likes bread and carbohydrates so he has lots of pasta, bread, bananas and plant based milks and products (cream cheese, etc.). It's boring - but we find hope and joy in having diminished nausea. Initially, he lost 30 pounds due to nausea. He has gained a little weight back. :). Hope you feel better.