Worried about the safety of bone building meds.

@meitene616 I just went thru exactly this.....UHC as a supplemental plan would not cover the Evenity either. The Finance office at my Rheumatology provider submitted the paperwork necessary to get me Tymlos for free from the mfr. I felt so blessed since no other medical provider had ever advocated for me - NEVER !!!! (My plan = UHC via AARP FYI). Research will be the ticket to success ! HUG !!!!!!!!!!!!!!!

@dunksmom1207

Are you on original Medicare? I have ubh supplemental also. I didn't pay out of pocket.

@gravity3 No, I have UHC thru AARP . Available plans vary by zip code (strange but true).

@dbamos1945 What does your doctor suggest you do after Evenity? I really don't want to take Reclast but that is what mine is suggesting I think.

@gravity3 My Evenity was covered since it was in the hospital infusion clinic and I was taking it for osteoporosis not osteopenia.

@ceciliabaker: I have decided on Fosamax 70 mg pill 1/week to seal in my Evenity strong bones.
There is a couple reasons I decided on this drug: Fosamax is a weekly dose - if there are any physical reasons this will clear my body quickly vs. 6mo or annual infusions. Fosamax has been used successfully for many years - it has good response.
Fosamax is said to be a more inexpensive drug, but has a good reputation.
Drug decisions are a very individual decision. I believe in doing my own research, learning from other patients and “gut feelings” before I agree to my docs recommendation for osteo health.
Time will tell… good luck!

My Dr suggested. Evenity
I fell and fx back. But only minor pain or no physical restrictions. Dextra showed only osteopenia numbers. I only had minor oa pain . My Dr recommendedvEvenity as the 3 yr of Reclast did not improve numbers. But after 10 months of Evenity
My pain trippled in left side and leg and
I could not walk let alone do my favorite gardening. After multiple PT attempts I could not bare weight WITH OUT PAIN ON LEFT. Left foot wit collasped arch the
Xray revealed left femur drop and push into acetabulum. I completed Evenity than use Reclast x1 .
Had Side effects of cortisol thickening in left thigh femur area.
Never again will I use ant medical bone builder.
I now require an anterior left hip replacement . My dancing days are gone
Age77.

@jdshep

I am so sorry that you are suffering. I'm not sure I understand. Are you saying that the need for a hip replacement is due to evenity/reclast or both?
If so, how was this determined?

I’m terrified of all the osteoporosis drugs. I have rheumatoid arthritis and have read horror stories about extreme bad side effects that last for month or years. My endocrinologist and rheumatologist want me to take Reclast or Tymlos. I can’t take the oral drugs due to having GERD. Anyone have RA and have taken any of these drugs without suffering long term serious side effects?

They all worry me, too. And here is a new angle I read from a preventative medicine researcher:
geranylgeraniol-for-bronj-prevention-pdf.pdf