OK, I understand being afraid to take a step - forward, backward or sideways. I am there right now because my recent adverse reaction to a drug my Rheumy put me on - I was doing so well and then wham! it hit and I'm taken off and dealing with side effects even 10 weeks later.

What you might want is simply try to resolve the issue of - do you have an autoimmune problem or not. If you don't have an autoimmune problem then what is it. If you do then try to focus on the correct treatment. Anyone with PMR probably feels like an experiment at times. I know I have. It is a default Dx and therefore it could be just PMR or PMR with something else. I had PMR and something else, it took them 7 years to find the something else.

You might focus on the basic question, do you have an autoimmune problem or not. What clinical lab or imaging tests lead the doctors to believe you have an autoimmune problem? And what medications make you feel better?