Describe your recovery from lung NET surgery

Posted by emilyfaith @emilyfaith, May 2, 2024

77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No symptoms, and otherwise in good health. Tumor board recommends surgery removal of entire lower left lobe. Please describe your surgery experience.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

I had a RML lobectomy
and a RLL basilar segmentectomy
on 9/22/2025.
My care is at the Perlmutter
Cancer Center - Langone.
The first six months were a challenge- short of breath and intermittent coughing and nerve pain.

REPLY
Profile picture for haelsky @haelsky

@emilyfaith
I had a similar experience.
Where is your
Net Specialist?
Are your CT chest scans with contrast?
I appreciate the information you have provided.
Positive prayers!

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Haelsky
My NET specialist is at Dana Farber in Boston,MA. I know there is more
information about the NET ‘s group on Dana Farber’s website.

I believe my CT have been with contrast and without contrast. I remember
being told the injection used for contrast has been reduced to protect my
kidneys but I’m not certain about that.

I believe in prayer .

Best wishes
Emily

Emily

REPLY

Thank you for your response.
I will ask about the dye used in
contrast. I hope that age is a consideration.

REPLY
Profile picture for haelsky @haelsky

I had a RML lobectomy
and a RLL basilar segmentectomy
on 9/22/2025.
My care is at the Perlmutter
Cancer Center - Langone.
The first six months were a challenge- short of breath and intermittent coughing and nerve pain.

Jump to this post

@haelsky
Hi, I was wondering who do you see at Perlmutter and who was your surgeon? What was your surgery experience like?
I'm scheduled for a robotic LLL segmentectomy there this month and I'm very anxious about it. They say I will only need to stay in the hospital overnight for one night. Also, I live 4 hours away, so I'm wondering if I need to stay in the area after the surgery?
Any information would be greatly appreciated.

REPLY

I am apologize for not responding.
I did not check Mayo Clinic site
I am more engaged with the facebook group
Lovable Lungnoids.
The surgeon I was referred to by the interventional pulmonologist was Dr. Michael Zervos.
On 9/22/25, I had a RML lobectomy and a RLL basilar segmentectomy.
I am still experiencing shortness of breath.
I see a pulmonologist at NYU
Langone and a thoracic oncologist at the Perlmutter Center.
I hope that you are recovering from your surgery.
Are you followed by a NET specialist?

REPLY
Profile picture for pantfan @pantfan

@haelsky
Hi, I was wondering who do you see at Perlmutter and who was your surgeon? What was your surgery experience like?
I'm scheduled for a robotic LLL segmentectomy there this month and I'm very anxious about it. They say I will only need to stay in the hospital overnight for one night. Also, I live 4 hours away, so I'm wondering if I need to stay in the area after the surgery?
Any information would be greatly appreciated.

Jump to this post

Profile picture for haelsky
haelsky | @haelsky | 12 minutes ago
I am apologize for not responding.
I did not check Mayo Clinic site
I am more engaged with the facebook group
Lovable Lungnoids.
The surgeon I was referred to by the interventional pulmonologist was Dr. Michael Zervos.
On 9/22/25, I had a RML lobectomy and a RLL basilar segmentectomy.
I am still experiencing shortness of breath.
I see a pulmonologist at NYU
Langone and a thoracic oncologist at the Perlmutter Center.
I hope that you are recovering from your surgery.
Are you followed by a NET specialist?

REPLY
Profile picture for shosh3700 @shosh3700

Lately, I have started coughing out of the blue for no reason. Has anyone else with NETS lung cancer experienced this?

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@shosh3700 I did, they removed the tumor with a lobe of my lung. After a year the coughing finally barely there.

REPLY
Profile picture for haelsky @haelsky

Profile picture for haelsky
haelsky | @haelsky | 12 minutes ago
I am apologize for not responding.
I did not check Mayo Clinic site
I am more engaged with the facebook group
Lovable Lungnoids.
The surgeon I was referred to by the interventional pulmonologist was Dr. Michael Zervos.
On 9/22/25, I had a RML lobectomy and a RLL basilar segmentectomy.
I am still experiencing shortness of breath.
I see a pulmonologist at NYU
Langone and a thoracic oncologist at the Perlmutter Center.
I hope that you are recovering from your surgery.
Are you followed by a NET specialist?

Jump to this post

@haelsky Thank you for responding. It seems as you had a major surgery. Sorry to hear you're still having shortness of breath. Are your thoracic oncologist and pulmonologist at NYU also NET specialists? My surgery is scheduled for June 22 with Dr. Cerfolio. LLL segmentoctomy possible lobectomy.

REPLY
Profile picture for shosh3700 @shosh3700

Lately, I have started coughing out of the blue for no reason. Has anyone else with NETS lung cancer experienced this?

Jump to this post

@shosh3700
I had surgery in 9/22/2025
I have shortness of breath
and intermittent coughing
I was told it may take a year or more for these issues to resolve

REPLY
Profile picture for sbrown959 @sbrown959

@shosh3700 I did, they removed the tumor with a lobe of my lung. After a year the coughing finally barely there.

Jump to this post

@sbrown959 What symptoms did you have prior to surgery?

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