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Any Briviact experiences to share?

Epilepsy & Seizures | Last Active: 6 hours ago | Replies (138)

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@santosha

Thank you! I’ll keep all in touch after my discussion with the local specialist I had been seeing next week. He knew about my auras issue. And they still impact my quality of life because of the frequency issue. I’ll also let you know if reducing screen time works!

I finally also had that thought to live life for myself. Step back from the usual a little. Not sure if that will help. For too long, even after having this condition, I realized I was too obsessed about work. I had been neglecting my closed ones who are also battling this with me. I didn’t consider what my mum always told me - “if you still don’t have the money to spend, tell me because when I’m gone ultimately my asset goes to you”. I think my dad feels the same way.

Of course as a son I won’t want to go beg my parents for money. But actually, my role as a son is to spend whatever they will leave me in a meaningful way and let them witness the results while they are still alive. And that’s not something I had done. I knew my wife always wanted another kid and perhaps my parents wanted another grandkid to have fun with. My wife and I are a bit old for another kid now. But because of monetary concerns which I had over this issue, I never gave all those things much thought when I should have. Use their money. It’s not shameful, when I won’t spend it in ways which are meaningless. After all, it’s continuing a family’s legacy and for my parents, also let them have more fun in their final years by me using whatever money they have given me. Don’t make the same mistake I made if you’re still young enough.

Cheers,
Louis

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Replies to "@santosha Thank you! I’ll keep all in touch after my discussion with the local specialist I..."

@louissc
Hi Louis,
What you've shared shows real self-awareness — and that in itself is already a big step forward!
Your mum's words say it all, don't they? Parents don't just want to leave things behind; they want to see you live well while they're still here. That's the real gift. And it sounds like you've finally heard her. ❤️
I somehow recognize myself in what you're describing, Louis. When my diagnosis finally forced me to step back from my work — a very important part of my life — it wasn't easy at all. I felt like I was losing part of myself — my value, my purpose, my independence — and I had to rework my whole sense of who I was and what I was for. That kind of internal shift doesn't happen on its own.
You asked me earlier how neuropsychological support has helped me. What you're sharing today answers that question better than I could. My neuropsychologist helped me rebuild my sense of value after stepping back from work, untangle the loss of financial independence, and find a healthier relationship with myself, among other things. That inner journey you're on, Louis — questioning, reflecting, wanting to live differently — is real and important work. And it's the kind that's much easier with the right support alongside you. I've mentioned it before, and I'll mention it again: finding that support could make a real difference.
I'm glad you're seeing your specialist next week and I'm curious to hear what comes out of that conversation. And do let me know how the screen time reduction goes — small changes sometimes surprise us.
Fingers crossed for you!
Chris