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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@barbbie

Hi Mert. I have small fiber neuropathy dx by two biopsies in both feet and hands. I also have complex regional pain syndrome in both feet and left leg. I just asked my primary care about muscle cramps and he told me to get magnesium citrate which I haven't done yet! I can also relate to laying down and the pain in my calf and thigh and butt. Have had injections in sciatic nerve that have helped for a while.. I find neurologists useless and was told the same as you IAIYH. I have been seeing a pain management doctor for eight years now who is absolutely brilliant. I have had a spinal cord stimulator for eight years and find it helpful, more so for some areas than for others. My foot pain is the worst. A botched foot surgery by an orthopedic surgeon caused my complex regional pain syndrome (CRPS). My pain management doc is very knowledgeable about CRPS. Perhaps someone near you knows more about CRPS than most. It might be a place to look. If there is more you'd like me to share, I'd be happy to. Blessings, Barb

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Replies to "Hi Mert. I have small fiber neuropathy dx by two biopsies in both feet and hands...."

Barb, that is exactly where I am. Foot pain is the worst, especially "frozen" feet, but the pain is moving around all over my body, including arms, legs, high back, low back, and ankles. Injections did help me for awhile too. My primary sent me to a rheumatologist but she is doing tests I have had done before to no avail. Latest is bone density, but I think you can tell when it is not the bones, when the pain is nerves and muscles... Discouraged, but whatever you can share is helpful. Thank you.

Thanks Barb. I will definitely try the magnesium. thanks again