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Fatigue , and exercise.

Posted by dkelban @dkelban, Aug 16, 2024

There is a pattern to my fatigue (I have mixed connective tissue disease).. It's most pronounced, by far, in the afternoon. Anyone else have a pattern to their fatigue, and how much does moderate exercise help?

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Mort | @kuma | Oct 6, 2025

Thank you Mayo Clinic, I awake from my Systemic Lupus Erythematotus induced afternoon sleep 😴 and what do I find, why this fantastic article. Thank you very much.

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nancykunkel | @nancykunkel | 1 day ago

My sister had surgery on 11 discs about 10 months. She went to a transition center and received some PT and OT, but was released and sent home very quickly. She had some in home PT &OT but was soon returned to the Hospital because of weakness/extreme fatigue and a transition center again. This has happened 4 times. Has anyone else had this difficulty? What can be done about the extreme fatigue? How do you fight it?

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texasblooms | @texasblooms | 22 hours ago
In reply to @nancykunkel "My sister had surgery on 11 discs about 10 months. She went to a transition center..." + (show)
Profile picture for nancykunkel @nancykunkel

My sister had surgery on 11 discs about 10 months. She went to a transition center and received some PT and OT, but was released and sent home very quickly. She had some in home PT &OT but was soon returned to the Hospital because of weakness/extreme fatigue and a transition center again. This has happened 4 times. Has anyone else had this difficulty? What can be done about the extreme fatigue? How do you fight it?

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@nancykunkel I’ve heard recovery from back surgery is awful I cannot imagine recovering from surgery on 11 discs in 10 months A monumental challenge. ❤️ to your sister.
My situation is very simple in comparison. This method may not be suitable for your sister, her recovery seems very, very complex.

@becsbuddy posted a response a few years ago about “The spoon Theory”. Basically it’s measuring the amount of activity I can do without using too many spoons. I vary the number of spoons with my pain level. Spoon Theory info is also available online.
The Spoon Theory has helped me manage my day, fatigue and wellbeing.
Thank you @becsbuddy.

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dkelban | @dkelban | 18 hours ago
In reply to @melodyanne "Understand. I was a walker and bike rider until I was 64. Then I began to..." + (show)
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Understand. I was a walker and bike rider until I was 64. Then I began to feel bad, ear and sinus issues for which I had surgery last July. Then lung issues and next kidney issues kicked in. Finally diagnosed with ANCA GPA Vasculitis in November, then had a major flare with ICU stay. Not sure I will ever be "me" again, but very thankful I have finally begun to regain some strength. Praying for your renewed strength. Blessings.

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@melodyanne : thanks to all my readers and for the replies: all kind and helpful.

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dkelban | @dkelban | 18 hours ago
In reply to @texasblooms "@nancykunkel I’ve heard recovery from back surgery is awful I cannot imagine recovering from surgery on..." + (show)
Profile picture for texasblooms @texasblooms

@nancykunkel I’ve heard recovery from back surgery is awful I cannot imagine recovering from surgery on 11 discs in 10 months A monumental challenge. ❤️ to your sister.
My situation is very simple in comparison. This method may not be suitable for your sister, her recovery seems very, very complex.

@becsbuddy posted a response a few years ago about “The spoon Theory”. Basically it’s measuring the amount of activity I can do without using too many spoons. I vary the number of spoons with my pain level. Spoon Theory info is also available online.
The Spoon Theory has helped me manage my day, fatigue and wellbeing.
Thank you @becsbuddy.

Jump to this post

@texasblooms : 11 discs... Ohh my god. Best wishes and cheers to your and everyone else's courage and persistence here.

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