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Concerned about medications for ET JAK2

Blood Cancers & Disorders | Last Active: May 25 1:35pm | Replies (26)

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@lindakay55

Unless you're lucky enough to respond perfectly to HU, it is really, really frustrating to find the dose that's exactly right for you.

You WILL get there!

In the meantime, please let yourself rest when you need to. You may not look like you have a serious medical issue -- but you do.

Some people find taking HU just before bedtime makes them feel less fatigue during the day. That might be worth trying. Don't ever take HU on an empty stomach, though.

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Replies to "@lindakay55 Unless you're lucky enough to respond perfectly to HU, it is really, really frustrating to..."

@janemc yes I do always take it at bedtime but this last increase has just wiped me out. Seriously, I don’t think I can increase anymore. Wow! I don’t know what to do. I hope it passes but it’s been two weeks now .