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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 12 hours ago | Replies (5964)Comment receiving replies
@newzbug, Good evening and welcome to connect. We do not have medical credentials. Our medical experience is our own lives e.g. encounters with neuropathy and other afflictions. What is your reaction to the diagnosis? You stated in your post that you know there is no "cure" for any type of neuropathy. Nerves age and struggle to send messages to our muscles. Have you begun to create a daily protocol sheet that tracks the times and doses of your medications?
Sometimes the numbness in the feet becomes a hazard not only for staying balanced but also for having enough feeling in your feet to safely drive a vehicle. I have been conscientiously working on those feet for several years and have found that the only thing that works is consistently is Myofascial Release (MFR), a special kind of massage treatment.
Like you, I have most of my pain in my arms, wrists and hands. I just keep working on the pain and its buddy anxiety. When both of them are coming in loud and clear, and the barometric pressure is under 30......I remain pretty sedentary.
Have you found activities that distract you from the pain and keep the anxiety about the pain under control? Would you feel O.K. about sharing what works for you? I hope you have a restful sleep and can respond tomorrow. Chris
Replies to "@newzbug, Good evening and welcome to connect. We do not have medical credentials. Our medical experience..."
I was sort of getting my hopes up when my husband and my doctor tried to convince me something I knew wasn't true … that there was any medication I could take, or therapy or surgery. So there was a bit of a let down when the neurologists looked me in the eye and said,
"I wish I could say your low Vitamin D levels were the cause, but I can't" I just know things are going to get worse and just trying to cope as best I can. I also deal with Major Depressive Disorder so this could be an issue of worsening down the road, but for now I just deal with what is before me. Sometimes I just cry, a nice release of tension, or go to bed early, or do something I can still do … like play video games. While the neuropathy started in my feet, it is also now in my right hand. When I rest my hand on hard surfaces it hurts, but fabrics are comfortable, so I sometimes wear a compression glove to help with that. I don't mind sharing, I find it helps the anxiety and depression a little … Ask me anything, if I can help I will try. A friend is anyone who is good to you.
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The samples are marijuana! None have done anything while vaping, For some reason, driving really kills my feet! Neuropathy and cramping toes! Roadtrips used to be my hobby! Leaving to see foot doctor! Holler later!