Neuropathy with or without pain?

Posted by patriciaschulz1950 @patriciaschulz1950, May 11 5:03am

I enjoy all these discussions. My neuropathy is 24/7 pain. It is relentless. I can’t tell from a lot of the discussions if you have pain or only tingling/numbness? This has been unfortunate journey for me as my continues to spread up into my legs, and most definitely has affected me emotionally/mentally. I am becoming exhausted for trying to resolve the chronic pain . Anyone else?

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Profile picture for patriciaschulz1950 @patriciaschulz1950

@johnbishop thanks John . I do know that I need to preoccupy my time - unfortunately I have reached that point of giving up - fighting it - I have scheduled an appointment with mental therapist while looking for a chronic pain support group. I LOVE the Foundation of Peripheral Neuropathy
Frustrating there are so many stories.

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@patriciaschulz1950
I have neuropathy in my feet and piriformis syndrome. I use a lot of lidocaine lotion and wear thin, loose-weave, stretchable diabetic socks I get from Walgreens. I also have comfortable Sketchers Cozy Fit sneakers. I take Lyrica and Tizanadine (muscle relaxer), (Topiramate for when it's really bad--but sparingly because it tends to really numb-up my feet and lower legs), a R-Alpha-lipoic Acid + Turmeric supplement. Also I take L-Carnatine, and Beet Chewy supplement for blood flow. I also take Ibuprofen, and Tylenol/Painquil sometimes. Sometimes I use Dr. Shoals shoe insert pads. It's really bad when it's cold and rainy or with the barometer lowering. Sometimes I have to put a 2nd pair of loose warm socks over my socks, or put my feet under the electric blanket. I recently got shoes with custom made orthotic inserts. The verdict's still out for me on that. I have a pain management specialist and a foot specialist to help me manage. I have gotten cortisone injections in my piriformis (rear-end) and SI joint (hip) which helped a lot with that neurological (sciatic-type) pain. My foot specialist said she may give me cortisone injections around my toes if the orthotic shoes don't reduce my toe/foot pain enough. You're not alone. It's a very challenging condition which requires much care. I have been living with this over 1 year now and still figuring things out, but managing. Hope this helps.
Best wishes.
D.T. Johnson

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I have decided to try CBD/THC capsules along with a topical directly on foot. My concerns is my left toe is BB and concern about amputation. I watched my mom lose many toes due to diabetes and neuropathy. Trying avoid but my neurologist/pain management only want to put me on anti depressants/nerve medications. Although brings pain level to a 5/6 it makes me loopy. If I have to feel that way, going to try other medicinals. I hope you find some relief. Orthotics did not work for me.

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Hi, I was just listening to this doctor Sanjay Gupta talking about a cure that he had for his wife that had neuropathy and it was supposed to be with Manuka honey from New Zealand It is called Jointvance has anybody heard of this pill And tried it? If anybody has, I was wondering what the results were. Did you feel any relief after the first or second bottle? Thank you in advance

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Profile picture for quadwilly @quadwilly

Hi, I was just listening to this doctor Sanjay Gupta talking about a cure that he had for his wife that had neuropathy and it was supposed to be with Manuka honey from New Zealand It is called Jointvance has anybody heard of this pill And tried it? If anybody has, I was wondering what the results were. Did you feel any relief after the first or second bottle? Thank you in advance

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@quadwilly they hacked him it is a scam

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Same here. Getting worse as time goes by.

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Profile picture for shirleyabess @shirleyabess

Same here. Getting worse as time goes by.

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Welcome @shirleyabess, Sorry to hear your neuropathy is getting worse. How long have you been dealing with the neuropathy symptoms? Have you found any treatment that provide any relief?

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I have PN without pain but I do have balance problems and calf muscle tiredness as well as muscle wasting.

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Profile picture for suetex @suetex

I have PN without pain but I do have balance problems and calf muscle tiredness as well as muscle wasting.

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@suetex
I guess I’ve been fortunate that I have not experienced actual pain-other than the severe shocks that soot in your feet at times. Actually those are very infrequent now, but numb toes & feet continue to worsen over the years. Not diabetic, but A1C is higher, but I’m older-who knows these days?! My balance has been worsening some as well, and sadly I tripped & fell hard on cement & fractured my humerus-real pain!! …not to mention aggravation & inconvenience!
I mentioned recently that I started the peptide injections for healing, etc. is there another neuropathy group-thought I would get some inquiries, but too soon to have anything to report. I am hopeful!

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Profile picture for doblack50 @doblack50

@suetex
I guess I’ve been fortunate that I have not experienced actual pain-other than the severe shocks that soot in your feet at times. Actually those are very infrequent now, but numb toes & feet continue to worsen over the years. Not diabetic, but A1C is higher, but I’m older-who knows these days?! My balance has been worsening some as well, and sadly I tripped & fell hard on cement & fractured my humerus-real pain!! …not to mention aggravation & inconvenience!
I mentioned recently that I started the peptide injections for healing, etc. is there another neuropathy group-thought I would get some inquiries, but too soon to have anything to report. I am hopeful!

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@doblack50 Sorry about your injury. Stay in touch.

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