Connect
Comment receiving replies
@naoshapiro1 I too have had Bladder Cancer 5x over the corse of 16 years; not the same as yours but I know at first I felt my life had made it’s complete circle and my end was near. My last cancer was three years ago and each time Chemo was the treatment after the tumors were removed. Yet, the cancer continues to return, so I ask myself why have the chemo if the cancer continues to return? I do worry about the cancer spreading so I do semiannual follow ups. I do have Ankolosing spondylitis and have had it for better than 50 years. When it first hit me I felt helpless and started to fade away, lost all kinds of weight and pretty much stopped eating. It really affected my mind and at the time I was living with my elderly grandparents. In a way, that is what saved me because I was to be there for them not them for me! I found support groups, started water exercises, moved into a small camper so that my grandparents did not feel so compelling to be at my side and daily I slowly did things for them as my body slowly recovered. I always felt a lot of it was controlled through my mind. The mind is Very powerful. I’m sorry for all that you have had to go through! It’s not easy but try to stay positive and remember, you are the one in control of your life and body. Best of luck to you!
Replies to "@naoshapiro1 I too have had Bladder Cancer 5x over the corse of 16 years; not the..."
Connect
@dannyandebbie I am very sorry for what you have been going through and it seems that you have done so much for your grandparents and for yourself it took all kinds of strength of body and mind to do everything that you've been doing and I really look up to you for that. I am so careful with what I eat. I weigh my food by grams and ounces and I'm doing everything that I'm supposed to do to get this infusion into me without pain. I'm drinking a huge amount of water so that I won't get kidney stones which I've had in the past and they say to make sure you drink 28 ounce glasses of water before you go and it's only 11 o'clock in the morning and my infusion is 1130 tomorrow morning and I've already had about 40 ounces of water. I try to drink about 85 ounces of water a day. I also increased my calcium intake to about 1500 mg per day which is what they recommend before your infusion I get about 1085 mg of calcium from calcium citrate powder and I get about 400 mg of calcium from the food I eat I can't eat milk product so I get the calcium from other sources. I eat four small meals a day and finish eating at 4:45 because I go to sleep at nine and if I don't stop eating then I'll have terrible burning, burning, burning reflux because I lost 8% of my bone in 2 1/2 years because of the omeprazole I have to take I'm gonna start physical therapy soon so that somebody can carefully supervise me while I learn to lift weights because I do exercise 40 minutes in the morning with bands and I do isometric exercises too sitting standing and lying down and I walk over two hours a day but apparently nothing is enough because that omeprazole just takes bone away from my body. I'm prediabetic and hypoglycemic so I have to be very careful what I eat. I'm 99% vegan and I just added about one and a half ounces of sardines with a bone in it to increase my calcium where I was eating one and a half ounces of chicken all the rest of the food I eat is totally vegan and organic. I'm really really really hoping that my carefulness will keep me from having the pain in the suffering that you have gone through and I'm really really sorry that you have gone through it. I'm sure the chemotherapy has taken a lot from you. I had radiation and chemo almost 7 years ago when they took out my esophagus for a squamous cell, I think of you and hope that you will transcend this terrible experience and that your bones will get better and you will get better Naomi