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Anyone else find the side effects of Hydrea 500MG frightening?
Blood Cancers & Disorders | Last Active: May 9 4:02pm | Replies (171)Comment receiving replies
My Red platelet level is elevated but my Red and White blood is fine. I have been taking 500mg for about 1 year. In December 27 2025 I got shoulder pain. I went to a shoulder surgeon and he said that I don't have any tears or a bad rotator issues. About a month after that I noticed that I am weak in my right arm and I have no lateral movement . He sent me to a Neurologists. They did a EMG on my arms and shoulders. They said I have Parsonage Turner Syndrome. I have gone to therapy for 8 weeks. Still no lateral movement in my right arm. It says that it can take up to a1 ot 2 years before I will get full movement in my arm. I never had any issues with my shoulders till I have been taking Hydroxyurea. I am 70 years old.
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@biggermike3
I'm so sorry for what you are going through. How very difficult!
Having never heard of Parsonage-Turner Syndrome -- it's rare! -- I did a quick search.
Google AI says:
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Based on current medical literature, there is no direct evidence that myeloproliferative neoplasms (MPNs) specifically cause Parsonage-Turner syndrome (PTS).
However, MPNs and PTS share underlying mechanisms—particularly immune system dysregulation and inflammation—that might create a potential link, though it is not a widely established complication.
MPN patients are more prone to immune system dysfunction. PTS is widely believed to be an immune-mediated disorder where the body mistakenly attacks the nerves of the brachial plexus.
Inflammatory State: MPNs are chronic inflammatory conditions, and inflammation plays a key role in the development of PTS.
Physical Stressors: MPNs can cause severe fatigue, anemia, or other complications that may lead to unusual physical stress on the body, which is a known trigger for PTS.
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As if having ET weren't bad enough!
Again, I'm so sorry, bigger mike3. Please let yourself be mad this has happened. Getting struck by one lightning bolt of ET, then another lightning bolt of PTS, is NOT FAIR.
Please let us know how you're doing.