@azrosegoldjust wondering.... Flagstaff in Florida? I was told in July after a bone scan that the tumor in my chest was growing. I'm sure my mouth fell to the floor. My heart did. I was never told I even had a tumor to be worried about. Now I'M wondering how long it was there. Then on my post-op visit, the surgeon told me I had 3 more. He said not to worry they were small. That was not the point. I wanted to know after having a PET scan with no more tumors found, how they suddenly appeared 2 months later? Just makes you wonder. Then I switched surgeons and was told about DIPNECH, and the shots for it. I am supposing the first surgeon did not know about either. So important to go to a specialist for Carcinoid cancer. Just because they are a "Cancer surgeon" does not mean they are familiar with the protocol for NETs.