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← Return to Tapering prednisone
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@sslions it seems to be totally different for so many people. Prednisone is horrible, but admittedly the pain was gone in literally an hour with 1st dose. Life back, back skiing, gym and able to dress myself. I had/have basic PMR started at 30MG, then down 5MG each week which seemed very fast but worked. NO pain. At 5MG now, thinking 2.5 and see what happens. Reading about everyone's experience is really helping. Maybe understanding that reactions may be different for different people and not get discouraged. For me anyway.
Does anyone have any notion, or article that indicates at which Prednisone dose the adrenal glands start waking up? Seems that when they start waking the tapering should be slower??
Replies to "@sslions it seems to be totally different for so many people. Prednisone is horrible, but admittedly..."
@pmrnew I recommend going to YouTube, find Dr Megan, the Prednisone Pharmacist. She has hundreds of videos on prednisone, tapering, PMR and other autoimmune disease info. She has said that once you get to around 5mg prednisone, it gets harder because that’s the amount most of our bodies produce normally. If your astral are slow to kick back in, you may need to stay there longer.
@pmrnew I'm impressed that you are able to get back to the gym and skiing! I'm newly diagnosed with PMR after suffering with the pain and stiffness for most of January and February and part of March. I'm on a 2nd round of a 4 week prednisone taper (one week 20mg, next week 15mg etc,) While on prednisone, my legs and forearms feel like I've already had a full workout with weights! A bit like lactic acid build-up after a long bike ride or hike uphill. I can power thru it when walking upstairs but the last few steps are tough. So much fatigue. My doctor has me concurrently taking hydroxychloroquine (sp?) in hopes that it will kick in to replace the prednisone. I had big plans to get back on my bicycle for long country rides and back to the gym for weight training, but I get fatigues so easily.
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Found this link posted by someone else on this sight. Very helpful and informative!
https://connect.mayoclinic.org/comment/1564657/