@colleenyoung , Hello and sorry for the late post. I can’t sleep as my hunny is snoring🙂.

1. Write down your fears and discuss with your MD or the Social Worker as he will have an amazing transplant team and join a FB Support Group as they offer so much input prior and after surgery
2. Talk to family or friends as you will need support as caretaker and wife. You will need to get some me time.
3. He needs to walk, exercise do as much as he can prior and after.
4. Start looking for equipment ie shower chair and anything you may require as I know prior to my DLT I was very weak used a wheelchair, bath chair and commode, hated them so be prepared to meet with some resistance if this ends up happening, be proactive and see what your insurance cover and budget for what may be needed. There are a lot of free or reasonably priced items on your local marketplace
5. We had to learn the many meds I take as our meds are lifetime. Note my family took care of all for about 2 months then I took over this task. Sometimes depending on location the hosp team wants you close if listed. My understanding is each hospital different so write down questions
6. Stay positive as yes it’s scary but you and your husband will get through this.

I hope I helped a little as you are not alone and we are stronger than we know as having any pulmonary issues is difficult. Learn as much as you can as you will be your husbands advocate and fortunately or maybe not I did speak to my husband prior and made sure he understood what I wanted and left instructions on so many things to make it a bit easier as life moves even when we can’t. I left instructions on what I pay, passwords etc so my husband and children wouldn’t stress so much and let people help. God Bless you and your husband and you are added to my prayers🙏🏼🙏🏼🙏🏼