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How, when, where do you start the liver transplant process?
Transplants | Last Active: 6 days ago | Replies (58)Comment receiving replies
@gently I live in a small town in New Mexico. Shes been to every emergency room here and they never knew what it was until recently. Its so hard to get an appointment with a specialist here end we dont hardly have any. They didnt tell us the levels or anything at all. Just if it gets worse to come back.
Replies to "@gently I live in a small town in New Mexico. Shes been to every emergency room..."
@shacquie Good Day,
I used the Mayo website to fill out a request for a liver consult when I was diagnosed with cirrhosis. It did take a couple of months, but I was tested for transplant and cared for by Mayo in Jacksonville. You are closer to the Arizona Mayo. You could fill out a request for an appointment there. They will ask a lot of questions and you will need to provide medical reports of your condition but age was not a problem.
Here is a link to get started. Wishing you the very best.
https://www.mayoclinic.org/appointments/intro
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@shacquie we were in Nebraska, my husband was working there. We were living in our 32 ft trailer. When my husband started getting high ammonia levels, it was at 2 a.m. he got out of bed and was just standing in the living area. I got up and asked him what he was doing. He said he was fine. I went back to bed next thing I know he is on top
of counter. I called the ambulance the guys had a hard time getting him in the ambulance. He was taken to hospital and had very high ammonia levels (hepatic encephalopathy). He had to start taking lactulose and rifaximin. He was also getting paracentisis (fluid from stomach out) every Wednesday. It was easy getting liver dr appointments once we got the first appointment in San Antonio Texas. Corpus Christi does not have too many liver specialists. Best liver Drs and liver transplant hospital are in San Antonio Tx. The Drs said there is really no way of knowing when ammonia is up, but if you have her hold her hands up in front of herself, if they start shaking and going forward that’s a telling sign her ammonia is up. My husband got a liver transplant. He is having problems right now with his memories. They said they have to tweak medications.