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DiscussionLiving with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: 1 day ago | Replies (967)Comment receiving replies
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@lisalucier
I'd like to try. No. 1 My husband has been Type 1 Diabetic since 13. He's 82. He's been extremely well regulated with exercise and a strict policy eating well. (His lifestyle was hard to believe when we married 50 years ago) He's had no side effects from Diabetes.None,
Zero
2. About 5,6,7, 8 ? years ago he was told he had Parkinsons. But, very little tremor or gait change. He's played tennis since 13 , two or three times a week. Up until March 2024.
We ate at a restaurant. Both felt funny. My reaction left quickly.His did not. He had Diarrhea for 2 weeks then lost the sight of the left eye. He played tennis once during that 2 week period. 3. a Retinologist told him he had an eye infarction. Go home take an aspirin. 4. An Ophthalmologist said go to the emergency room. He was in the hospital for 4-5 days for tests. No symptoms detected for any disease. But he had a high SED rate (Inflammatory marker)
5. The Rheumatologist prescribed 1 gram solumedrol for
3 days, then 60 mg Prednisone which would taper to nothing at some point. (Then, Actemra prescribed.)Afib was detected during this time in the hospital,
Hallucinations occurred, and High blood sugar. All believed related to the high dosage of cortisones given.
His legs had serious edema for 6 - 9 mos. He could not exercise. Otherwise , he was good , but frustrated . Prednisone and Actemra were believed to have caused the edema. He is no longer prescribed Prednisone or Actemra. His legs are healing from Edema. But, then "Venous Insufficiency" occurred. Walking was a good exercise. Diabetes were Parkinsons are OK. Eliquis still given. In November 2025 he began to look very , very pale. His skin color changed.
He had trouble walking because he became exhausted in a
very short time. He had trouble getting out of a chair to walk. He made odd factual errors, occasionally. He was unusually tired.
From November 2025 to March, 2026 he has had these symptoms.....5 months . His PCP said that tests did not indicate a problem. He said that there is no literature to indicate Eliquis as the reason for this.
I think it is quite possible Eliquis is modifying his body.
No one can say for sure, of course. But, I think it is quite likely.