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I am a 75; year old woman diagnosed with orthostatic tremor.
My neurologist diagnosed me as having orthostatic tremor, I am a 75 year old woman. Three doctors had no idea what was wrong with me. Apparently this rarely hits anyone, but usually an older woman. I have been having issues I now realize go back 8 years. If I life only one foot off the ground, I will fall over. I have fallen many many times. I never could figure out why. My only injury was a broken shoulder! Otherwise bruises only.
Are there any other women out there like me?
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@khali
The diagnosis of OT is based on history and physical examination. However, the diagnosis should be confirmed by surface EMG recordings revealing on standing rhythmic activation of lower limb muscles at sharply peaked frequencies between 13 and 18 Hz, and sometimes higher.
This is very good information. It’s from 2016 I think.
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Dr. Karen Sullivan spoke about this in 2016, I believe.
@robina64
Dr. Karen Sullivan talked about this in 2016 I believe.
@robina64
Thank you, it is very nice to hear a doctor say she knows what it is and yes, it is an actual disorder which affects mostly older women.
@1ticktock
My name is Robert I have recently been diagnosed with OT by one neurologist and another neurologist is undecided. I'd like to find out more please
My name is Robert I have recently been diagnosed with OT by one neurologist and another neurologist is undecided. I'd like to find out more please
I am a 76 year old female. I realize now that my first indication was over ten years ago when trying to walk down old concrete steps in France. There was no,railing and I had to hold hands with my friend to make it,down. My family doctor and two other doctors found nothing wrong with me. One doctor put small pins into my legs that were,attached to some electrical impulse thing, while I was lying down. There was no reaction. I have since read that for electrical nerves to show up, I should have been standing. My first neurologist had to study the matter for quite awhile before having her nurse call me to tell me she thought I might have Orthostatic tremor. I was not prescribed any meds nor told what I might do about the problem. My second neurologist sent me for an MRI of my neck. He said he did not think I had OT. He then sent me to a neurological surgeon. He saw nothing wrong with my neck.
All I can advise is read anything and everything on orthostatic tremor, there is a lot out there. I use a cane if I’m feeling unsteady. I am very very careful when walking, especially up or down a curb, or on a staircase. If I am with a companion, I hold hands. I’ve been traveling by plane quite a bit lately and always request a wheelchair meet me. Sometimes I don’t need it but when one airline gate is far from the next one, it is necessary for me. I haven’t fallen in a long long time because of my precautions. Hang in there and do all you can for yourself. The only med mentioned was for Parkinson’s and I’ve chosen not to try it because of the side effects. The worst fall I’ve taken is when I lifted one leg to step over the vacuum hose. Just don’t do that 🤨. Always hang onto someone or something.
Good luck to you!