Replies to @ccps101 Currently, my rheumatologist is on an expedition of sorts as to whether or not I…

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Osteoporosis & Bone Health | Last Active: 4 days ago | Replies (47)

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@beachesanddreams

@ccps101 Currently, my rheumatologist is on an expedition of sorts as to whether or not I have an autoimmune condition.

I have an ANA titer of 1:16, speckled. All other inflammatory markers are normal. I have some lower back stiffness every now and then which I manage with exercise, BUT, a recent MRI also showed two benign Tarlov cysts on my spine, along with a concentration of blood vessels. She is watching that, with another MRI scheduled for April.

It’s all confusing (adding to my stress and sadness), and I think all of this feeds into my fear of taking the Tymlos.

Thanks again for your descriptive explanations. You’ve actually managed to make the Tymlos sound (dare I say) enticing! 😂

I am drawing from your strength and positivity today!

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Replies to "@ccps101 Currently, my rheumatologist is on an expedition of sorts as to whether or not I..."

ccps101 | @ccps101 | Feb 2 4:57pm

@beachesanddreams Autoimmune disease diagnosis can take time. Think I read an article recently that most patients go 4-5 years before getting proper Dx. Took me awhile, though my 3 came on in stages. The conditions do tend to run in packs. I remember when I first saw my current rheumy she said she was surprised it took so long for my second condition to be DX. My only advice there is if you don’t have good connection with your rheumy, keep looking. I finally ended up with a gem. I hope things go well for you on your path! I’m sharing my path here just based on MY experience. Everyone is different! Best of luck

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