Well, where to start.
I presume this virus has caused you a lot of infections problems during the time you were losing your hearing.
At any time did any doctor do any scans such as PET/CT Scan, special CT or MRI to determine any other damage, and or infections that you may still be having and don’t even know it?
Do you have any pain in the ear, or at the lower base of your skull on the left side, which had the virus?
Why do I ask these question is because I have gone through a similar experience on my left ear since 2014.
I had an infection and the ENT doctor decide to insert a tube for draining purpose.
In March of 2016 the doctor tried to take the tube out, but had a lot of problems removing it.
But before I proceed, I need to tell you my full story in as short of form as I can.
I am on my 3rd journey with cancer.
In 1973 I had parotid saliva gland cancer on the right side, and had to go through radiation therapy.
This was my 1st journey.
Back then radiation therapy was so different from today, and much more destructive and no control, which did a lot of damage to my on the right side.
The end result in 1991, after approximately 15 surgeries, was to totally remove the entire hearing and balancing system due to the chronic infections caused by the radiation.
As someone already mentioned to you in a post, single-sided implants was not an option even in the early 1990’s.
So the doctor wanted to make sure no more infections would come back.
So I have only had hearing on the left side since 1991 and have used a number of different B/C hearing aid systems since that time.
2nd journey with cancer was with basil cell on my nose. After 2 surgeries the margins were cleared and I did not require any therapy.
My 3rd journey with cancer was in 2012 and was the left parotid saliva gland and the tumor had grown into the facial nerve and the margins were not cleared. The decision made by the tumor board was not to do further surgery, so this made the job more difficult for the radiation oncologist in her treatment plan.
So now I have the radiation effects from 2012 that I’m dealing with daily,
I think that’s as short as I can make it and to give you an idea of what I am dealing with for a long time
My hearing in the right ear started to go down hill after the radiation in 1973 and eventually was deaf by the time of the surgery in 1991
So I was dealing with single-sided deafness most of those years.
Again, back then I didn’t meet the requirements for cochlear implant as the left I was still able to hear.
So I had to suffer with the handicap for a long time.
Anyway, moving forward with the problems I was having with the left ear.
From July 2014 my hearing in the left ear was also being effected by the infections and really was going down fast.
After having the tube remove, which took 3 months to heal from that and during that time period, I could not hear anything beyond 2 or 3 feet away with any clarity.
I finally decided to go through with the test to see if I qualified for the cochlear implant in December.
I no doubt did qualify for it.
So I met with the surgeon and we decided that it was best to go forward with the implant surgery.
But he decided that it was best to do the surgery in 2 stages.
The first stage surgery would be to do a mastoidectomy, clean out the area and to seal off the ear canal.
The reason for t his is to eliminate the chances of any further infections that would possibly damage the cochlear implant unit.
It took me a long time to decide if I wanted to go through with this, even though a surgery date was planned.
I am happy to say I did go through with the surgery #1 and am recovering from it now.
I can hardly wait to go through with surgery #2 in September.
Since December I have had contact with a lot of people who have had first hand knowledge of the success people have had with the implants ranging in all different age groups.
So that’s my experience with dealing with various hearing issues.
So my suggestion is that you make a list of questions before you meet with this mayo clinic team again.
Include some of the things I pointed out.
What are they going to do before the surgery,
More test such as the scans I mentioned above to make sure that you are not no a victim of chronic ear infection and if so should you also have to have the mastoid remove to prevent future infections which could cause damage to the implant unit.
I say this because even though my scans have been showing the mastoid problems, one ENT I have wasn’t concerned about it.
But the ENT surgeon doing the implant surgery was very concerned about.
He also said that it would eliminate a pot of pain in the ares I pointed out.
He was right and the chronic mastoid infection was part of t he problem.
Well I am not not sure if I have helped you with your questions or concerns.
Please let me know if you want further information.